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Please consider sending friends and loved ones a Myocarditis Foundation Tribute Card

Our Tribute Cards are given for any reason that one might purchase a greeting card; however, it includes the acknowledgement of a donation made to the Myocarditis Foundation. Tribute Cards can be given for any reason including Memorial Cards, Birthdays, Anniversaries, Graduations, Thank You, Mother’s Day, Father’s Day, or any other Holiday or Occasion.

MF-Tribute-Cards

Please consider sending our Tribute Cards for your next significant holiday or occasion. All donations go towards our continuing research.

Tribute cards can be sent for a minimum donation of $5.00, up to any amount of your choosing, you could help to save another precious life through your gift.

Posted by Myocarditis Foundation in Uncategorized.

Call for advertisements to be placed in the program at the 3rd Annual Patient, Family and Research Meeting

 

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The Myocarditis Foundation is hosting their 3rd Annual Patient, Family and Research Meeting in National Harbor, Maryland, on September 25 and 26, 2015. Our meeting brings together the patients and families that have suffered from the disease, doctors who treat the disease, and researchers who are advancing our understanding of the disease. We expect 100 participants at our meeting.

The Myocarditis Foundation, celebrating its 10 Year Anniversary in 2015, strives to save lives by pursing our mission of educating the public and physicians about the disease, supporting patients and families affected by the disease, and funding research to find answers.

Posted by Myocarditis Foundation in Awareness & Fundraising.

New Myocarditis Foundation Director Named

The Myocarditis Foundation is pleased to announce their new Director, Genevieve Rumore, effective immediately. She will assume the day-to-day responsibility for the foundation and can be reached at gen@myocarditisfoundation.org or by calling the office at 281-713-2962.

Gen comes to us with 40 years of nursing and administrative experience.

She has first hand experience in dealing with myocarditis. Her husband Joseph of 38 years, had myocarditis as a young adult. He recovered only to be left with the long- term side effect of cardiomyopathy and heart failure, which led to his heart transplant in 2006.

Gen has made it her life’s goal to help promote awareness of this disease, raise funds for research, and support patients and their families who have gone through dealing with the devastation that this disease causes.

Posted by Myocarditis Foundation in Myocarditis News.

The Myocarditis Foundation 3rd Annual Patient, Family and Researcher Meeting

We are excited to announce that the 3rd Annual Patient, Family and Researcher Meeting will be held September 25 & 26th, 2015 in National Harbor, MD near Washington, DC. Please see information about the meeting below, we look forward to seeing each and every one of you. MF 2015 Family Meeting Save the Date

Posted by Myocarditis Foundation in Awareness & Fundraising, Myocarditis News, Press Releases.

Rare Disease Report: Myocarditis- A Mother’s Story

Michele Cola-Veston, mother of Nino a 21 year old boy who passed away from giant cell myocarditis, was interviewed by the Rare Disease Report about her families story of their battle with myocardits.

The link below contains the Rare Disease Report video interview with Michele Cola-Veston:

Rare Disease Report: Myocarditis- A Mother’s Story

Posted by Myocarditis Foundation in Awareness & Fundraising.

Rare Disease Report: Myocarditis Foundation Origins and Current Focus

Candace Moose, Co-Founder and President of the Board of the Myocarditis Foundation, was interviewed by the Rare Disease Report about the origins of the Myocarditis Foundation and what the Foundation’s current focus.

The link below contains the video interview with Rare Disease Report interview with Candace Moose

Rare Disease Report: Myocarditis Foundation Origins and Current Focus

Posted by Myocarditis Foundation in Awareness & Fundraising.

Tyler’s Story

On May 21, 2014 we lost our beautiful, healthy, and active 19-year-old son Tyler to viral myocarditis. Tyler was bright and funny and was just getting his life started. Ty loved all kinds of music and was an avid bass guitar player. He enjoyed sketching manga-style cartoons and writing poetry. Tyler’s favorite rock groups were The Doors and Stone Temple Pilots. He was captivated by the TV series “Breaking Bad”, and loved to discuss the show with his many friends. At his funeral, all of his friends that spoke claimed Tyler was their best friend.

On that day, Tyler had just driven home from his girlfriend’s house to shower and get ready for work.

Posted by Myocarditis Foundation in Uncategorized.

Mechanical Circulatory Support Saves Lives in Children with Myocarditis

Many children who develop acute viral myocarditis present to their care team in shock or in impending shock. They frequently have poor circulation, weak or “thready” pulses, and irregular heart rhythms. Their other organs such as the kidney, liver and lungs may also be weakened or injured. These patients are at greatest risk of cardiovascular collapse and death.

Fortunately, mechanical circulatory support (MCS) devices may allow doctors and surgeons to save the lives of children with advanced heart failure caused by myocarditis. A MCS device is a type of artificial heart pump that is inserted into the patients’ blood vessels and/or directly into the heart.

Posted by Myocarditis Foundation in Uncategorized.

The Quinn M. Kirsch Memorial Grant: 2015 Research Grant Named in Memory of Quinn M. Kirsch

The Myocarditis Foundation is pleased to announce that they have named their 2015 research grant in memory of a little boy from Minnesota who died two years ago of myocarditis. The Quinn M. Kirsch Memorial Grant was awarded to Dr. Michael Bode of UNC/Chapel Hill, North Carolina who is conducting research under the mentorship of Dr. Nigel Mackman.

Quinn Cup To raise the $35,000 to cover the cost of the grant, Quinn’s parents, siblings, friends and school held several fundraisers but the primary event was Quinn’s Cup to celebrate the life of this warm and much-loved child who collapsed suddenly in his home after an ordinary day of activities, and died later that day at the hospital.

Posted by Myocarditis Foundation in Uncategorized.

Tufts University’s 180 Degrees Consulting to design marketing program for the Myocarditis Foundation

A group of staff and volunteers from The Myocarditis Foundation traveled to Medford, Massachusetts, this week to deliver a presentation to a team of students from Tufts University, representing 180 Degrees Consulting.
The Tufts University branch of the international university-based organization, 180 Degrees Consulting, is designing a marketing program for the Myocarditis Foundation focused on young adults, one of the most vulnerable populations to inflammatory heart disease.
A special thanks to Sue Hall and Stuart Kravitz for presenting their myocarditis stories with the students. The students were inspired by their very moving stories.

Posted by Myocarditis Foundation in Awareness & Fundraising, Myocarditis News.