The reason of this message is about our son, Aaron who is 16 years old. Almost two years ago, he got very sick. After finding him lying on the floor one day, we brought him to the emergency. He was diagnose with the swine flu. About a month after that, one of his lung collapsed and he was brought again to the hospital where they kept him for a week. While he was there, Aaron noticed something wrong with his heart. After monitoring his heart, the nurses found that there was a problem. He was then transferred to the cardiology department at the IWK hospital in Halifax.
He then saw 7 different specialist and they were all saying different things. They always reassured us in saying that they where confident that this was not related to the swine flu. They tried different mediaction but it was making him sick.
He was OK for the first year but, this year, his situation has gotten worse. He started to have shortness of breath, to get very tired and had to sleep between his courses at the college. Sometimes, his heart would beat so fast that he could not sleep at night. At some occasion, the shortness of breath became so severe we had to bring him to the emergency room. Again after several routine test, the doctor reassured us that the shortness of breath was probably not related with the heart but told us he didn't know what was causing it.
He was then transferred to the adult cardiology department in Halifax. When we met with the specialist the first time, he was not really alarmed about the case. He was also not sure that Aaron's heart problem would cause fatigue and shortness of breath. He ask to have a monitor put on him for two weeks. When he got the results, he found that there was a problem but, for him it look not really serious. He told us that he would try the ablation procedure.
Since May, Aaron's condition got worse. At one point, he started having nausea and we had to bring him to the emergency where they kept him for the night in the trauma room.
They did the ablation 3 weeks ago. At first, the doctor thought that the problem was in the left side. When he started with the procedure, he saw that there was a problem on the left side. Aaron was there 7 hours. When he came out the doctor told us that he was not expecting what that he found. He told us that Aaron had an extremely rare heart disease. He said that there were scars there and that he tried to burn some parts but, didn't think it would help the problem. He told us that at one point, after being stimulated, the heart went into arrhythmia so bad that they had to put Aaron to sleep and shock his heart for it to come back to normal. He told us that he had to stop because he didn't want his heart to get tired. He didn't know if there was a problem with the left side because he did not went there. He told us that he would ask for an urgent MRI to be done.
We have gone for the MRI yesterday. After seeing the doctor, he told us that they had found another problem. There are also scars in the muscle that separates the left and right side of the heart (cardiomypitis) and this problem was even more serious than the first.He told us he was almost sure that H1N1 caused that problem and there was nothing to do about that except trying medication. He said that the condition will probably get worse. Aaron is 6 feet and is a strong Young man. His condition is really deteriorating and it affects his life more and more. I thought maybe you could help.
We don't know what to think and do.
Thank you so much,
Ken & Nancy BiddingtonNew Brunswick, Canada