Last Updated: October 11, 2012
THE FOUNDATION IS NOT A MEDICAL PROVIDER NOR IS IT A “COVERED ENTITY” SUBJECT TO STATE OR FEDERAL LAWS GOVERNING THE PRIVACY OF MEDICAL RECORDS OR INFORMATION, INCLUDING THE HEALTH INSURANCE PORTABILITY AND ACCONTABILITY ACT OF 1996, COMMONLY REFERRED TO AS “HIPAA”.
Changes and questions
We receive and store personally-identifiable information that you voluntarily provide to us when you enter it on our website (such as when you register to tell your Myocarditis story, sign-up for newsletters, make a donation) or when you provide it by mail, telephone, email, fax or in any other way. This information includes information that can identify you, including your first and last name, telephone number, address, social security number and other potentially sensitive personal information including income and health related information.
How we use personally-identifiable information
We use personally-identifiable information to provide, and to communicate with you about our mission, fundraising, and Myocarditis research. We may transfer this information to outside contractors, auditors, consultants or others hired by the Foundation to assist in providing financial or operational activities on the Foundation’s behalf, including technical and processing services and analysis of website performance. We do not transfer personal identifying information to any other third parties unless we receive your permission or we are required to do so by law, or we have a good faith belief that such disclosure is necessary to comply with a current judicial proceeding, a court order, a legal process served on the Foundation or to resolve any potential fraud or perceived irregularity in any audits of the accuracy of any documentation or information submitted to the Foundation by you or on your behalf, as deemed appropriate by the Foundation.
NON PERSONALLY-IDENTIFIABLE INFORMATION
Non personally-identifiable information that you submit or we collect
Non personally-identifiable information is any information that, by itself, cannot be directly associated with you. This may include gender, age, ZIP code, medical history and treatment, income, household size, and other information we collect from the patient survey. It may also include IP address (when it is unassociated with any personal information), the domain name and browser that you use to access the internet, the pages that you visited on our site and the address of the web site that you visited immediately prior to visiting our site.
Use of Non-Personally Identifiable Information
We use non-personally identifiable information for research and statistical purposes, to remember your preferences, to communicate with you and to monitor and improve the quality of our information and website. We also use non-personally identifiable information in aggregate in our annual report and other materials we produce to educate donors and the public about the services we provide.
ELECTRONICALLY PRODUCED DATA
To opt-out from the collection and use of non-personally-identifiable data by websites adjust your browser settings, or click here: http://www.networkadvertising.org/index.asp. Note the following: 1) that opt-out links are browser specific and will need to be visited with each browser program with which opt-out is desired, and 2) if cookies are deleted from any browser, the opt-out link will need to be re-activated.
IP Addresses and UDID’s
An IP address is a number that is assigned to your computer when you use the internet or a Unique Device Identifier (UDID) if you are using a mobile device. Like most standard website servers, the Foundation collects IP addresses and other technical information about your machine through your web browser such as your operating system, browser type and referring URL for the purposes of, among other things, system administration and to ensure the validity of user requests.
Like most standard website servers we use log files. These files include Site usage data such as internet protocol (IP) addresses, browser type and internet service provider (ISP) and access time. We use log files only to track errors in the system.
Clear Gifs (Web Beacons/Web Bugs)
Clear gifs are tiny graphics with a unique identifier, similar in function to cookies, and are used to track the online movements of internet users. However, some third parties who provide services to our Site, including, e.g., Facebook and Google may use clear gifs in providing their services. Read the third parties’ respective privacy policies prior to accessing their services from the Site.
Third Party Advertising
The Foundation does not display or solicit third party advertising on the Site; however some third parties who provide services on our Site, including e.g., Facebook and Google, may employ cookies, log files, clear gifs, and/or collect your IP number or Unique Device Identifier (UDID) if you are using a mobile device in providing their services. Read such third parties’ respective privacy policies prior to accessing their services from the Site.
USE OF ELECTRONICALLY PRODUCED DATA
We use electronically produced data to remember your preferences, to communicate with you, to facilitate your communication with other users, and to monitor and improve the quality and visibility of our mission, information and website. We also use non-personally identifiable electronically produced data in our annual report and other materials we produce to educate patients, patient families, donors, and the public about our mission and supporting Myocarditis research.
Transitions of Operations or Transfer of Assets
In the event the Foundation goes through a transition, such as a merger, being acquired by another entity, bankruptcy, or selling a portion of its assets, users’ personal information may be part of the assets transferred. We can provide no assurance that user will be notified in advance of the transfer, if any, of their personal information in connection with any such transition or transfer.
Security of your information
Protections. The Foundation maintains physical, electronic and procedural safeguards to protect the confidentiality and security of any personally identifiable information that you disclose to us. The Foundation utilizes what we believe to be industry standard security measures to protect the loss, misuse and alteration of personally identifiable information under the Foundation’s control, and we limit access to your personally identifiable information within the Foundation to those employees who need to know the personally identifiable information to provide information to you. However, due to the nature of the Internet, computer networks, systems and other factors, no transmission of data over the Internet is guaranteed to be completely secure. It may be possible for third parties not under the control of the Foundation to intercept or access transmissions or private communications unlawfully, regardless of the Foundation’s best intentions. As such, we cannot ensure or warrant the security of any information you transmit to the Foundation, including without limitation personally identifiable information.
The Foundation website includes links to other websites (the “Linked Sites”). In providing access to these Linked Sites, the Foundation is by no means endorsing the products or services on these Linked Sites. The Foundation is not responsible for the privacy practices or the content of the Linked Sites, and hereby expressly disclaims all responsibility and liability associate with use of the Linked Sites. We recommend that you review the privacy statements posted on those sites to understand their procedures for using and disclosing personal information and electronic data.
Privacy of Children
The Foundation does not knowingly collect, store or disclose information about children under the age of 18 without parental consent. If we receive information from a child that we know to be under the age of 18, we will use that information only to inform the child that we must have parental consent.
Should you have any questions or concerns regarding this policy, please contact us at: Lindsey(at)Myocarditisfoundation.org
Limitation of Liability
Unavailability of Website
The Foundation reserves the right to alter, suspend or discontinue this website at any time for any reason without notice or cause. This website may be temporarily unavailable due to maintenance or malfunction of computer equipment.