Feb 24, 2020

Luke Gould Memorial Hockey Tournament

Luke Gould Memorial Hockey Tournament   March 16 - 22, 2020 West Seneca Ice Rink 1300 Union Road West Seneca, NY  14224 Please...
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Feb 11, 2020

Vero Beach Fundraiser

  Please join us and consider sponsoring a table to invite your friends and learn how this dangerous heart condition impacts the...
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Feb 11, 2020

National Organization for Rare Disorders (NORD) Conference

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Feb 11, 2020

National Association of Pediatric Nurse Practitioners

  Click here for more...
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Feb 11, 2020

Rare Disease Day

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Feb 10, 2020

Quinn’s Cup Pond Hockey Awareness Event in Memory of Quinn Kirsch

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