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X-WR-CALDESC:Events for Myocarditis Foundation
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DTSTART;VALUE=DATE:20240711
DTEND;VALUE=DATE:20240715
DTSTAMP:20260408T015123
CREATED:20240315T164204Z
LAST-MODIFIED:20240315T164311Z
UID:18132-1720656000-1721001599@www.myocarditisfoundation.org
SUMMARY:2024 Myocarditis Foundation Family Conference\, July 11-14\, Dallas\, Tx
DESCRIPTION:The Myocarditis Foundation is thrilled to announce the dates of our 2024 family meeting! This family meeting will be held July 11th through July 14th in Dallas\, Texas\, at the Statler Hotel. Please join us to experience reflecting and connecting with others who have been affected by myocarditis. There will be a welcome reception & memorial candle lighting ceremony\, myocarditis & pericarditis specialists and researchers available for your questions\, updates on latest information\, activities focused on well-being\, as well as a fun event on Friday night. \nAttached below is a PDF packet with more details on the activities\, meals\, and accommodation. \nMF Family Meeting 2024
URL:https://www.myocarditisfoundation.org/event/2024-myocarditis-foundation-family-conference-july-11-14-dallas-tx/
LOCATION:Statler Hotel\, Dallas\, Texas\, 1914 Commerce St\, Dallas\, TX\, 75201\, United States
CATEGORIES:Events,Upcoming Events
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DTSTART;VALUE=DATE:20240131
DTEND;VALUE=DATE:20240202
DTSTAMP:20260408T015123
CREATED:20231114T205457Z
LAST-MODIFIED:20231116T172610Z
UID:17531-1706659200-1706831999@www.myocarditisfoundation.org
SUMMARY:Golf Fundraiser
DESCRIPTION:Mr. Jerry Austry is hosting a fundraiser on behalf of the Myocarditis Foundation. He will be selling an autographed hardback copy of his book\, The Hogan Edge\, for $31.95 with $11.95 per book being donated to the Myocarditis Foundation. In addition\, he will be selling his new putter – The Stroke Balanced Edge putter. Each putter can be customized with any university\, college\, or professional team logo. The purchase price for the customized putters is $600. For each putter purchased a donation of $150.00 will be sent to the Myocarditis Foundation. \nAbout the Author and Putter Designer: \nI have dedicated my book (The Hogan Edge) and my new putter (The Stroke Balanced Edge) to my son Mark Stanley Austry who died of Myocarditis on March 14\, 2010 at the age of 32. Mark loved the game of golf from the time he was a toddler until his death. After college Mark took up the game seriously and set a goal for himself of becoming a top amateur player and qualifying to play in the Masters and British open tournaments.  He became a very accomplished golfer and set the course record at his home course (LANTANA Country Club).  Winning the club championship 7 times in a row.  We had played golf so many times together in every type of weather\, that I had a very difficult time going back to the golf course without him.  After his death I was devastated\, there was a hole in my heart and my pain on some days was crippling\, I was searching for a way to handle the grief from his loss\, that is when I started my imaginary golf match with Mark. that lasted 8 years compiling a score to match his record round of 63. Every time I played golf\, I would take his memory with me and this helped soothe the pain of his loss.  Now every time I remove the putter cover that his brother designed with angel wings\, the number 9 and Mark’s initials I feel his loving presence beside me. \n  \nAbout the Book: \n \nThe Hogan Edge is a book about the inception and creation of an iconic golf company and the success that was achieved by the Ben Hogan Company for over twenty-five years. This was followed by the turmoil the company went through\, following a corporate raid\, and by reorganizing the management team and how by featuring Ben Hogan in an ad campaign at the Riviera Country Club pole-vaulted the company to become the leader once again in golf club manufacturing. Then how by working with Ben Hogan to develop the Edge\, the first cavity back club ever produced\, elevated the company to the highest revenue levels in the history of the company.  Finally\, the book covers Hogan’s downward spiral after a Japanese company purchased them and how they systematically unraveled Hogan’s previous astounding success. \n  \nAbout the Putter: \n                         \n  \nThe Stroke Balanced Edge putter is a brand-new technology that no other golf company is offering today. He will set aside 25 completely personalized clubs under a special price of $600.00 with a $150.00 donation per club to going back to support the Myocarditis Foundation. The Stroke Balanced Edge putter offers the golfer\, the following benefits. \n\nPrecision Machined Center Shafted\nHozeless Construction\nZero Toe or Heal Twisting at Impact\nPerfectly Balanced Pendulum Stroke\nCerakote colors to match grip selection\nPersonalized university or professional team colors with matching grip\nCustomer initials stamped into the product\nSpecial: Head cover in memory of my son Mark\n\nIf you have any questions or would like to order\, please contact Jerry Austry: \njerryaustry@att.net or  (817) 925-9662
URL:https://www.myocarditisfoundation.org/event/golf-fundraiser/
CATEGORIES:Events,Upcoming Events
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DTSTART;TZID=America/Chicago:20231118T130000
DTEND;TZID=America/Chicago:20231118T150000
DTSTAMP:20260408T015123
CREATED:20230830T212859Z
LAST-MODIFIED:20231013T151142Z
UID:17182-1700312400-1700319600@www.myocarditisfoundation.org
SUMMARY:Myocarditis Foundation Chili Cook-Off
DESCRIPTION:If you would rather mail a payment\, please download\, and fill out the information packet below and mail it to the Myocarditis Foundation. Questions and registration forms can be emailed to Melissa Graham at melissa@myocarditisfoundation.org\nChili Cook Off Information Packet\nChili Cook Off Rules
URL:https://www.myocarditisfoundation.org/event/myocarditis-foundation-chili-cook-off/
LOCATION:Back Pew Brewery\, 26452 Sorters McClellan Road\, Porter\, TX\, 77365\, United States
CATEGORIES:Events
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20231006
DTEND;VALUE=DATE:20231008
DTSTAMP:20260408T015123
CREATED:20230712T172429Z
LAST-MODIFIED:20230825T201126Z
UID:17047-1696550400-1696723199@www.myocarditisfoundation.org
SUMMARY:UPDATED! In-Person Family Meeting October 6th and 7th in Cleveland\, Ohio
DESCRIPTION:We have recently added updates on the in-person Myocarditis Foundation’s Family Meeting of October 6th and 7th\, 2023 \nWe are looking forward to seeing everyone there! \nOctober 2022 was the first in-person meeting we were able to have since COVID started in 2019\, and it was a wonderful success. \nA few comments from some of the attendees: \n“This was a fabulous gathering. We were blessed to connect with other bereaved families of Myocarditis and to feel the support of the Myocarditis Foundation and the doctors.” \n“We were pleasantly surprised by the intimacy and personal warmth of a medically-oriented event.” \n“We really appreciated being together with this group of people who can all relate so well to our own trauma and journey.” \nSince then\, there have been a number of exciting developments in the field of myocarditis research that will be shared by the most knowledgeable myocarditis and pericarditis cardiologists and researchers in the country who will also be attending the meeting. They will be there to help answer your questions and provide updates on exciting work being done. \nWe know that October seems so far away\, but sadly\, it will be here before we know it. \nWhile we still need time to work on the particulars of the Meeting\, we would like to share with you our tentative Agenda so that you better understand our meeting format and look forward to attending. \nThere is a room block for you to reserve a sleep room at the Hampton Inn Downtown Cleveland for the reduced rate of $209 plus tax.  Click here to reserve your room online or call 1-800-HAMPTON.  Code: Myocarditis Foundation   \nThe cutoff date to reserve a room is September 5th. \nThe Myocarditis Foundation will pay the cost of your room for two nights at the block rate. However\, space is limited. Please reserve your room now. \nAlso Please email melissa@myocarditisfoundation.org to register for the meeting. \nSpeakers: Dr. Leslie Cooper\, Dr. Wilson Tang\, Dr. Katelyn Bruno and others\, pending \n  \nTentative Agenda: \nFriday October 6th. 5pm  – 10pm.   \nHampton Inn Downtown \n1460 East 9th Street  Cleveland\, Ohio 44114 \n\n5 pm  Check-in and Welcome      Lobby / 1st floor\nMeeting held in Ontario Meeting Room. 2nd Floor – Appetizers will be served during check-in\n6 pm  Dinner begins\n6:30 pm  Myocarditis Foundation then and now\, 2005 – 2023\n7:30 pm  Share your Myocarditis Story\n8:45 pm  Break\n9 pm  Candlelight Vigil\, remembering those lost and honoring survivors\n\nSaturday October 7th\,  9am – 5pm \nCleveland Public Library.   (900 feet walk\, approx. 1-2 minutes from hotel) \n325 Superior Avenue  Cleveland\, Ohio 44114 \n\n8:30 am  Check-in   2nd Floor  Learning Commons  LSW – Garden Window Area\n9 am – 12 pm  Speakers (Cardiologists\, Researchers\, with Myocarditis Updates)\n12 pm – 1 pm  Lunch and Networking\n1 pm – 3:30 pm  Breakout Sessions\n\nSurvivors: Opportunity to ask questions related to living with myocarditis \nFamilies of Victims: Opportunity to ask questions related to myocarditis and sudden cardiac death\, etc. \n\n4 pm  How You Can Help the Myocarditis Foundation\n4:45 pm  Closing Remarks\n\nEvening Event still in planning stage. We will share them when we have more information.  \nThe important thing is to reserve your spot and your sleep room as soon as possible! \n  \n  \n 
URL:https://www.myocarditisfoundation.org/event/in-person-myocarditis-foundation-family-meeting-october-6th-and-7th-in-cleveland-ohio/
CATEGORIES:Events,Upcoming Events
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DTSTART;TZID=UTC:20230814T123000
DTEND;TZID=UTC:20230814T150000
DTSTAMP:20260408T015123
CREATED:20230621T170805Z
LAST-MODIFIED:20230717T180238Z
UID:16978-1692016200-1692025200@www.myocarditisfoundation.org
SUMMARY:Register NOW and JOIN US for Lunch and a Roundtable Discussion with Dr. Leslie Cooper and others on Monday August 14th
DESCRIPTION:The Myocarditis Foundation will be hosting a Roundtable Discussion in Paramus\, New Jersey on August 14\, 2023 during our annual golf outing. In a small intimate setting\, you will be able to listen to our medical experts\, share your experience\, and ask questions. \nThis will be an opportunity to learn more about myocarditis\, meet some of our board members and staff and meet other families who have similar experiences. \nMyocarditis Foundation Summer Roundtable Discussion \nArcola Country Club \nParamus Road \nParamus\, New Jersey 07652 \n  \nRegistration will begin at 12:30pm and lunch will be served. Roundtable discussions to begin at 1:15pm \nOur panel will include: \n\nDr. Leslie Cooper\, MD\, Chair\, Department of Cardiovascular Medicine Mayo Clinic\, Florida.  Dr. Cooper is the Co-Founder and the Medical Director of the Myocarditis Foundation.\nCandace Moose\, RN.\, Giant Cell Myocarditis Survivor\, heart transplant recipient and Co-Founder of the Myocarditis Foundation.\nDr. Andrew Hamer\, MD\, a cardiologist\, and Chief Medical Officer for Cardiol Therapeutics.  Cardiol Therapeutics is conducting clinical trials for the treatment of myocarditis.\n\nSeats are limited\, so please register as soon as possible to melissa@myocarditisfoundation.org \nWe look forward to seeing some familiar faces and eager to meet some new ones. If you should need any further information\, please do not hesitate to contact giustina@myocarditisfoundation.org \nBe safe\, be well\, \nGiustina Schiano \nDirector and Mother of a Viral Myocarditis Victim
URL:https://www.myocarditisfoundation.org/event/roundtable-discussion/
CATEGORIES:Events
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DTSTART;TZID=UTC:20230303T000000
DTEND;TZID=UTC:20230405T235900
DTSTAMP:20260408T015123
CREATED:20230207T192438Z
LAST-MODIFIED:20230217T191013Z
UID:16040-1677801600-1680739140@www.myocarditisfoundation.org
SUMMARY:10th Annual Quinn’s Cup Jamboree March 3-5\, 2023
DESCRIPTION:10th Annual Quinn’s Cup Jamboree March 3-5\, 2023\nBraemar Arena\nEdina\, Minnesota\n\nKelly and Kyle Kirsch lost their 8-year-old son\, Quinn\, suddenly to Viral Myocarditis in January 2013. They had never heard the word Myocarditis before that and vowed to not let his loss be forgotten\, and to raise awareness of the disease for others. Since then\, their family and friends have raised awareness of the disease and funding to support the Myocarditis Foundation and Research of Myocarditis.  \nQuinn loved the game of Ice Hockey. His parents decided the best way to keep his memory alive and to help others learn about the disease\, that takes so many otherwise healthy children and young adults\, was to have a hockey tournament in his memory. Initially\, the tournament was played on a community pond in Edina\, MN\, where he lived with his parents and brothers. The community has come together and raised so much awareness of the one-day event\, that it has sold out (maxed out of players) for the past few years necessitating going to an Edina’s large sports complex\, an indoor arena where they now have a three-day-jamboree!  \n720 Children will be participating in the event. There is a waiting list for others to participate. If you live in the area\, please go and support the event.  \nThe Myocarditis Foundation thanks the Kirsch Family for all that they have done over the past 10 years to raise awareness of the disease and fund a Fellowship Research Grant in Quinn’s memory. 
URL:https://www.myocarditisfoundation.org/event/10th-annual-quinns-cup-jamboree-march-3-5-2023/
CATEGORIES:Events
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