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The Myocarditis Foundation Welcomes Previous Fellowship Grant Recipient to the Medical Advisory Board!

Dr. Bettina Heidecker, the 2007 Myocarditis Foundation Fellowship Grant recipient, has just been appointed to the Myocarditis Foundation Medical Advisory Board. Dr. Heidecker’s title of her research at that time was: “Gene Expression Profiling for Detection of Myocarditis.”

Since that time, Dr. Heidecker, has worked with Dr. Joshua Hare at the University of Miami Interdisciplinary Stem Cell Institute as a Post-Doctoral Fellow and Co-Principal Investigator, (2007-2009) studying transcriptomic biomarkers for new onset heart failure and to further develop the diagnostic biomarker for myocarditis.

Dr. Heidecker also completed her residency training at the University of Miami in Internal Medicine (2009-2012) as well as a Cardiology fellowship at the University of California, San Francisco (2012-2015) while continuing her research in myocarditis.

Posted by Myocarditis Foundation in Past Grant Recipients, Press Releases.

Save the Date!

The Myocarditis Foundation 4th Annual Patient, Family and Researcher Meeting will be held again in conjunction with the Heart Failure Society of America (HFSA) conference on Friday evening September 16th and Saturday September 17th at the Gaylord Palms in sunny Orlando, Florida!

Please set aside those days now as it will prove to be an even better meeting than last year’s event!

What a great venue to spend a few extra days enjoying yourself and family by visiting Disney World and all the other attractions nearby…just minutes away.

I do not have the Hotel arrangements as of yet, but as soon as I do I will share them with you.

Posted by Myocarditis Foundation in Awareness & Fundraising, Press Releases.

The Myocarditis Foundation Announces its 2015 Grant Recipient for the 2016/2017 Grant Cycle

The Myocarditis Foundation is pleased to announce that it will be funding a research fellowship grant for the 2016/2017 grant cycle. The Myocarditis Foundation will be awarding the research grant to Dr. Jon Sin of Cedars-Sinai Medical Center in the amount of $40,000. Dr. Sin is under the mentorship of Dr. Ralph Feuer of Cedars-Sinai Medical Center.

Jon Sin

The Myocarditis Foundation, an international non-profit organization founded in 2005, is dedicated to increasing awareness and hastening progress in understanding this rare disease. Myocarditis is a disease that is marked by inflammation and scarring of the heart muscle, which can progress rapidly to heart failure and death or heart transplantation.

Posted by Myocarditis Foundation in Awareness & Fundraising, Myocarditis News, Past Grant Recipients, Press Releases, Research News.

The Myocarditis Foundation 4th Annual Patient, Family and Researcher Meeting

Our 4th Annual Patient, Family and Researcher Meeting has been set for September 16th and 17th at the Gaylord Palms Hotel in Orlando, Florida.

We had a very positive meeting last September, with so many of our families joining us from all over the country and even Canada. We look forward to seeing them again, as well as meeting others of you who were not able to join us for one reason or another.

We are working on the actual program for the event, but many of the details have already been put into place.

We will again have a Welcome Dinner on Friday evening at a very fine Mediterranean Buffet Restaurant within the Hotel.

Posted by Myocarditis Foundation in Awareness & Fundraising, Myocarditis News, Press Releases.

The Myocarditis Foundation Announces its 2014 Grant Recipient for the 2015/16 Grant Cycle

The Myocarditis Foundation is pleased to announce that it will be funding a research fellowship grant for the 2015/16 grant cycle.  The Myocarditis Foundation will be funding a research grant awarded to Dr. Michael Bode of the University of North Carolina in the amount of $35,000.  Dr. Bode is under the mentorship of Dr. Nigel Mackman of the University of North Carolina.

Michael Bod

The Myocarditis Foundation, an international non-profit organization founded in 2005, is dedicated to increasing awareness and hastening progress in understanding this rare disease.  Myocarditis is a disease that is marked by inflammation and scarring of the heart muscle, which can progress rapidly to heart failure and death or heart transplantation.

Posted by Myocarditis Foundation in Myocarditis News, Past Grant Recipients, Press Releases, Research News.

The Myocarditis Foundation’s 2nd Annual Patient and Family Support Meeting

June 7th-8th, 2014 in Point Pleasant, NJ

The Myocarditis Foundation was honored to be able to hold its Annual Patient and Family Support Meeting for the second year in a row.  This meeting has proved to be invaluable to the patients and families affected by myocarditis, as the Myocarditis Foundation provides the opportunity for these individuals to come and meet several myocarditis experts, learn about the newest research, and meet others who know all to well the exact difficulties and pain this disease can bring to patients and their families.

family meeting 2014

2014 Family Meeting Attendees

 

This year’s meeting kicked-off with a sunset cruise down the Manasquan river where families were able to interact with each other and members of the Myocarditis Foundation’s Board of Directors, share their experiences, and ask questions in a casual atmosphere. 

Posted by Myocarditis Foundation in Myocarditis News, Press Releases.

Thank You to Boston Scientific

The Myocarditis Foundation would like to extend a large Thank You to Boston Scientific who awarded the Myocarditis Foundation a grant of $3,000 to cover the costs associated with the Myocarditis Foundation’s 2014 Patient & Family Support Meeting.  The Myocarditis Foundation is honored to be working with Boston Scientific, an organization dedicated to advancing patient care and saving lives, especially in the area of Heart Failure.

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The  2014 Patient & Family Support meeting was a huge success and it is because of the generous support from Boston Scientific that we were able to extend our services to the patients and families affected by the heart disease myocarditis.

Posted by Myocarditis Foundation in Myocarditis News, Press Releases.

The Myocarditis Foundation Announces its 2013 Grant Recipient for the 2014/15 Grant Cycle

 The Myocarditis Foundation is pleased to announce that it will be funding a research fellowship grant for the 2014/15 grant cycle.  The Myocarditis Foundation will be funding a research grant awarded to Dr. Yuji Nagatomo of the Cleveland Clinic in the amount of $35,000.  Dr. Nagatomo is under the mentorship of Dr. Wilson Tang of the Cleveland Clinic.

 The Myocarditis Foundation, an international non-profit organization founded in 2005, is dedicated to increasing awareness and hastening progress in understanding this rare disease.  Myocarditis is a disease that is marked by inflammation and scarring of the heart muscle, which can progress rapidly to heart failure and death or heart transplantation.

Posted by Myocarditis Foundation in Myocarditis News, Past Grant Recipients, Press Releases, Research News.

The Myocarditis Foundation’s Family Support Meeting and Researcher Workshop

On September 22nd and 23rd, the Myocarditis Foundation (MF) held its first Family Support Meeting and Researcher Workshop in Orlando, Florida.  The Myocarditis Foundation held these two events in conjunction with the Heart Failure Society of America’s (HFSA) Annual Scientific Meeting.  HFSA had invited the Myocarditis Foundation to co-host a myocarditis symposium with experts from around the world coming together to share the most recent findings in the field of myocarditis.  Being that there would be so many members of the Myocarditis Foundation’s Board of Directors in attendance of HFSA’s meeting, the MF decided to simultaneously hold meetings for the families and researchers of the Myocarditis Foundation.

Posted by Myocarditis Foundation in Myocarditis News, Press Releases, Research News.

Teammates for Kids & Kroenke Sports Charity Awards Grant to the Myocarditis Foundation

On August 17th, the Myocarditis Foundation was awarded a $2,500 grant from the Colorado Rapids Teammates for Kids Foundation and the Kroenke Sports Charity of Denver, CO.  The Myocarditis Foundation was nominated when a family of the Rapids soccer team lost their young daughter earlier this year to myocarditis.  The team sprang into action and dedicated their 2013 season to raising awareness of myocarditis.

Representivies from five charities accepting grants on the field at the Rapids game on August 17th

Representivies from five charities accepting grants on the field at the Rapids game on August 17th

 

The Teammates for Kids Foundation is a national non-profit that is dedicated to helping kids. They focus on helping children in the areas of health, education, and inner-city outreach. 

Posted by Myocarditis Foundation in Awareness & Fundraising, Myocarditis News, Press Releases.