I Have Myocarditis

Myocarditis is a disease marked by inflammation and damage to the heart. Several thousand individuals are diagnosed with myocarditis each year in the US.

I Lost Someone To Myocarditis

The best way to support yourself and your loved ones is to learn from others experiences, educate yourself about the disease, and get involved.

For Physicians And Researchers

Our site provides up-to-date information for physicians, nurses and researchers with the goal of partnering to make advances in diagnosis and treatment.

Annual Family Support Meeting was held June 22-23 in New York City

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The 2018 Patient and Family Support Meeting was held at the Warwick Hotel in New York City. The Family Support Meeting brought families affected by myocarditis together from around the world to spend time with each other and hear from myocarditis researchers and physicians about the advances in myocarditis diagnostics and therapeutics.

  • United States
  • Canada
  • UK
  • Other Countries

The Myocarditis Online Support Community has members from around the world!!


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The Myocarditis Foundation’s support community now has 199 members from 15 different countries around the world!! Patients, caregivers and friends are having valuable conversations. Recently many newly diagnosed patients and families have reached out for support. Click on a link below to view a conversation and lend a supportive word if you can.

Thankful I Found a Myocarditis Community ….. from a 23 year old nursing student

16 Year-old Healthy Son Just Diagnosed ….. from a mother in Minneapolis

Myocarditis – Living With It ….. from Jonah212 who was diagnosed in February

Visit myocarditis.inspire.com to participate


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4 Mar

Southern California Ballpark Pizza Event was a huge success!

On Saturday February 23rd, the Myocarditis Foundation had its 1st Annual Awareness / Fundraiser Event at Ballpark Pizza in Mission Viejo, California. Diane and Jim Poettgen opened their restaurant up to help the Foundation raise awareness on Myocarditis.  There was a constant flow of customers...


% More Men Than Women


32nd Leading Cause of Death Worldwide


% of Sudden Death in USA


Cases Last Year

About the Myocarditis Foundation

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The Myocarditis Foundation is an organization dedicated to providing accurate and up-to-date information to medical professionals, patients and their families, and to the scientific advancement of both the diagnosis and treatment of the disease with the goal of saving more lives.


The Myocarditis Foundation is led by world-renown physicians, researchers and patients who volunteer their time. It funds research fellowship projects and partners with researchers in order to improve diagnosis and find new therapies.


Our greatest challenge going forward is the lack of information about myocarditis. But there is hope- the Myocarditis Foundation is raising awareness by sponsoring national and international conference sessions, supplying physicians with recent findings, and supporting family-sponsored fundraising /awareness events.

Family Support

If you've been diagnosed with myocarditis or giant cell myocarditis, you are not alone. Although under-diagnosed, myocarditis affects otherwise healthy people each year and is a leading cause of sudden death.

How the Myocarditis Foundation was Founded

Featured Real Life Story

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Gracie’s Story

Sept 6, 2017 is a day our family will never forget. Before this date, Gracie was happy, healthy and rarely sick.

My Myocarditis Story

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These videos are interviews from myocarditis survivors, family members of victims, myocarditis foundation board members and myocarditis researchers. Filming of the videos was funded by a grant from the St. Jude Medical Foundation.