About Myocarditis

About Myocarditis

Myocarditis is classified as a rare disease but is estimated to affect thousands of adults and children in the U.S. and around the world each year.

About Giant Cell Myocarditis

About Giant Cell Myocarditis

If you ask the average person to define giant cell myocarditis, there’s a good chance they’ll be unable to. The same goes for a majority of physicians.

About Pericarditis

About Pericarditis

Pericarditis is a condition that affects the pericardium, a thin membrane that surrounds your heart. When pericarditis develops…

Toward a Cure

Thanks to our donors and volunteers, no one is alone in the fight against myocarditis. Ready to get involved? Contact the Myocarditis Foundation for more information or make a donation today.

Research

The Myocarditis Foundation is led by world-renown physicians, researchers and patients who volunteer their time. It funds research fellowship projects and partners with researchers in order to improve diagnosis and find new therapies.

Awareness

Our greatest challenge going forward is the lack of information about myocarditis. But there is hope- the Myocarditis Foundation is raising awareness by sponsoring national and international conference sessions, supplying physicians with recent findings, and supporting family-sponsored fundraising /awareness events.

Family Support

If you've been diagnosed with myocarditis or giant cell myocarditis, you are not alone. Although under-diagnosed, myocarditis affects otherwise healthy people each year and is a leading cause of sudden death.

Virus Hijacks

What Happens When a Virus Hijacks Your Heart?

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% More Men Than Women
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32nd Leading Cause of Death Worldwide
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% of Sudden Death in USA
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Cases in 2019
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Upcoming Events

UPDATED! In-Person Family Meeting October 6th and 7th in Cleveland, Ohio
Fri, Oct 06
UPDATED! In-Person Family Meeting October 6th and 7th in Cleveland, Ohio
Myocarditis Foundation Chili Cook-Off
Sat, Nov 18
Myocarditis Foundation Chili Cook-Off
Maria’s Story

Real Life Story

My name is Maria. I live in the U.K.

I was diagnosed with Myocarditis when I was 11 years old. Here is my story…

One day I started feeling really ill. I wasn’t able to keep any food in and I was very weak, I was having difficulty breathing, my heart was racing, and my whole body was aching.

I was lying in bed for couple of days thinking it’s just a virus and it would pass, but it wasn’t going away. My mom decided to take me to the hospital. I struggled badly while getting there – I was so weak I could barely even walk.

I had a lot of tests done. My internal organs were double in size and painful to touch. The doctors thought that I had been infected by a virus. My skin started to turn yellow, and all my blood results were very abnormal. None of the doctors knew what was wrong with me. They finally did a chest Xray which showed the problem.
Latest

Blog

The European Society of Cardiology Meeting in Amsterdam, Netherlands, August 2023

Dr. Mathieu Kerneis, MD, PhD, was the Principal Investigator of the recently completed ARAMIS Study. (Anakinra versus Placebo for the Treatment of Acute Myocarditis). Whereas acute myocarditis can resolve spontaneously,…

Please Join Us in Welcoming Dr. Javid Moslehi, MD, to the Myocarditis Foundation’s Medical Advisory Board

Dr. Javid Moslehi, MD, has recently been appointed to the Myocarditis Foundation’s Medical Advisory Board. He has a very impressive CV and was recently appointed as the Director of Myocarditis…

16th Annual Myocarditis Foundation Golf Outing Raises $195,000

On Monday, August 14th, the Myocarditis Foundation held its 16th Annual Golf Outing / Fundraiser at the beautiful Arcola Country Club, overlooking the New York City skyline, from Paramus, New…

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(281) 713-2962
800 Rockmead Drive, Suite 155
Kingwood, TX 77339
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Help Us End Suffering and Sudden Death from Myocarditis!

Donate to the Myocarditis Foundation Today!