About Myocarditis
About Myocarditis
Myocarditis is classified as a rare disease but is estimated to affect thousands of adults and children in the U.S. and around the world each year.
About Giant Cell Myocarditis
About Giant Cell Myocarditis
If you ask the average person to define giant cell myocarditis, there’s a good chance they’ll be unable to. The same goes for a majority of physicians.
About Pericarditis
About Pericarditis
Pericarditis is a condition that affects the pericardium, a thin membrane that surrounds your heart. When pericarditis develops…
Toward a Cure
Thanks to our donors and volunteers, no one is alone in the fight against myocarditis. Ready to get involved? Contact the Myocarditis Foundation for more information or make a donation today.
Research
The Myocarditis Foundation is led by world-renown physicians, researchers and patients who volunteer their time. It funds research fellowship projects and partners with researchers in order to improve diagnosis and find new therapies.
Awareness
Our greatest challenge going forward is the lack of information about myocarditis. But there is hope- the Myocarditis Foundation is raising awareness by sponsoring national and international conference sessions, supplying physicians with recent findings, and supporting family-sponsored fundraising /awareness events.
Family Support
If you've been diagnosed with myocarditis or giant cell myocarditis, you are not alone. Although under-diagnosed, myocarditis affects otherwise healthy people each year and is a leading cause of sudden death.
Virus Hijacks
What Happens When a Virus Hijacks Your Heart?
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% More Men Than Women
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32nd Leading Cause of Death Worldwide
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% of Sudden Death in USA
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Cases in 2019
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Upcoming Events

Fri, Oct 06
UPDATED! In-Person Family Meeting October 6th and 7th in Cleveland, Ohio

Sat, Nov 18
Myocarditis Foundation Chili Cook-Off
Maria’s Story
Real Life Story
My name is Maria. I live in the U.K.
I was diagnosed with Myocarditis when I was 11 years old. Here is my story…
One day I started feeling really ill. I wasn’t able to keep any food in and I was very weak, I was having difficulty breathing, my heart was racing, and my whole body was aching.
I was lying in bed for couple of days thinking it’s just a virus and it would pass, but it wasn’t going away. My mom decided to take me to the hospital. I struggled badly while getting there – I was so weak I could barely even walk.
I had a lot of tests done. My internal organs were double in size and painful to touch. The doctors thought that I had been infected by a virus. My skin started to turn yellow, and all my blood results were very abnormal. None of the doctors knew what was wrong with me. They finally did a chest Xray which showed the problem.
I was diagnosed with Myocarditis when I was 11 years old. Here is my story…
One day I started feeling really ill. I wasn’t able to keep any food in and I was very weak, I was having difficulty breathing, my heart was racing, and my whole body was aching.
I was lying in bed for couple of days thinking it’s just a virus and it would pass, but it wasn’t going away. My mom decided to take me to the hospital. I struggled badly while getting there – I was so weak I could barely even walk.
I had a lot of tests done. My internal organs were double in size and painful to touch. The doctors thought that I had been infected by a virus. My skin started to turn yellow, and all my blood results were very abnormal. None of the doctors knew what was wrong with me. They finally did a chest Xray which showed the problem.