Find a Specialist

Ask for Referrals

Myocarditis and pericarditis are classified as rare diseases. Specialists in these areas are few and usually found in large teaching institutions where they perform organ transplants.

If your primary doctor or cardiologist cannot help you with a specialist in these areas, the Myocarditis Foundation can help you find someone. Our specialists have shared the names of others who are very knowledgeable on the latest in the fields of myocarditis and pericarditis nationally and internationally. Please email [email protected] or call and speak with one of our staff for more information on specialists.

Explore Major Heart Centers and Research Institutions

Leading academic or research hospitals are often where you’ll find specialists in myocarditis and pericarditis. These centers are usually at the forefront of research and treatment for rare and complex heart conditions. U.S. News and World Report evaluated nearly 800 heart hospitals and ranked the top 50 that care for patients with challenging heart and vascular cases including heart transplants, implantation of cardiac devices such as pacemakers and defibrillators, major chest procedures and patients with cardiovascular disease and other complex conditions such as endocarditis, heart failure and circulatory issues. Their list of top US hospitals can be found here.

As respects to pericarditis, Kiniksa Pharmaceuticals and the American Heart Association partnered in a 3-year initiative aimed at enhancing care and outcomes for those suffering from recurrent pericarditis. It was designed to equip healthcare providers with the latest science and best practices to improve diagnosis and treatment. As part of this effort, they partnered with 15 leading healthcare facilities across the U.S. These hospitals will serve as champions, implementing key activities and sharing best practices within a collaborative network of experts in pericarditis care.

Look for Specialists in Inflammatory Heart Diseases

Some cardiologists specialize in myocarditis or inflammatory cardiomyopathies. They may also have experience with conditions such as pericarditis, giant cell myocarditis, and other autoimmune-related heart diseases. It also may be helpful to search for “inflammatory cardiomyopathy”, “viral myocarditis”, or “pericarditis” as a subspecialty.

Research the Cardiologist’s Background

Once you’ve identified a potential cardiologist, research their qualifications:

• Board Certification: Make sure the cardiologist is board-certified in cardiology and has a subspecialty in myocarditis or heart failure. 
• Experience with Myocarditis: Check if they have published research or clinical trials related to myocarditis. 
• Affiliated Hospital: Verify that the cardiologist is affiliated with a reputable hospital or medical center that has a good cardiology department.
• Check Online Directories and Reviews 
  • Healthgrades: Search for cardiologists by specialty and location and read reviews from other patients. 
  • ZocDoc: This platform allows you to search for cardiologists, book appointments, and view patient reviews. 
  • Vitals: Offers information on doctors’ specialties, education, and patient feedback. 

Telemedicine Options

If you live in a region with limited access to specialists, consider telemedicine. Many top cardiologists offer virtual consultations, especially at large medical institutions. This allows you to receive specialized advice without having to travel long distances.