Executive Director

Genevieve Rumore, RN, BSN

Credentials: Genevieve Rumore is a Registered Nurse with experience as a Certified Nurse in Critical Care, Adult and Pediatric Emergency Room Care, and Geriatrics. She was also a Certified Director of Nursing for Long Term Care and a State Surveyor of Long Term Care Facilities. Not only does she have work experience in these areas but she also worked closely with cardiologists during her husband’s many years of heart failure. The heart failure was caused by Viral Myocarditis which he developed as a teenager after a bout with Mononucleosis.

I have known my husband since I was 15 years old. Cardiology has always been my main interest since my husband developed Cardiomyopathy as a teenager. I know the suffering, both programmatically and financially that he and our family experienced for so many years dealing with the devastating effects of long term heart failure from myocarditis. After he so miraculously received the gift of a new life with his heart transplant, both he and I devoted ourselves to raising awareness of the disease.

I welcomed the offer to work with the Myocarditis Foundation and can feel for those who reach out to the Foundation for answers. Every time someone thanks me for the work that the Foundation does, I know that what we do is so worthwhile and a much needed support system for them.

Board of Directors

Leslie T. Cooper, MD

Credentials: Dr. Cooper is a founder of the Myocarditis Foundation, has had a career-long focus on Myocarditis, particularly Giant Cell Myocarditis. He has published over 130 original peer-reviewed papers as well as contributing to, and editing books on myocarditis. His research focuses on multicenter clinical and translational studies of myocarditis and its major consequence, dilated cardiomyopathy. In addition to his clinical and research work, Dr. Cooper is a fellow of the American College of Cardiology, The American Heart Association, the European Society of Cardiology Heart Failure Association, The International Society for Heart and Lung Transplantation and the Society for Vascular Medicine and Biology. He serves as a consultant in Cardiovascular Diseases and is the chair of the Mayo Clinic Enterprise Department of Cardiovascular Medicine at Mayo Clinic. He holds the rank of Professor of Medicine at the Mayo Clinic College of Medicine.To view his Mayo Clinic webpage, click here.

I serve on the board because there is no better way to help patients and their families who are impacted by myocarditis. Every time I hear from a grateful family and I know that the information and support that we provide is unique, I am reassured that the time and effort spent on the Myocarditis Foundation activities is worthwhile.

Candace Moose, Myocarditis Foundation Board MemberCandace Moose

Credentials: Candace Moose is a giant cell myocarditis survivor and heart transplant recipient. She is a retired nurse and a wife, mother, and grandmother. She also is a speaker and advocate for organ donation and is the author of the book The Grateful Heart: Diary of a Heart Transplant

I serve on the Board of Directors of the Myocarditis Foundation because I want to put an end to the suffering this disease wreaks on patients and families. I am passionate, driven, and fully committed both programmatically and financially to try to make a difference. This disease caused so much suffering in my family and in every family that contacts us from all over the world. I pray that the work we do will someday result in greater awareness of the disease, faster diagnostics and better treatments leading to more lives saved and decreased suffering.

Joseph RumoreJoseph Rumore

Credentials: Joseph Rumore is the former Managing Director of Agency Reinsurance Companies for the Atlantic Mutual Insurance Companies. Joseph is a heart transplant recipient due to myocarditis.

 

I am a heart transplant recipient. The transplant was needed as a result of Myocarditis. It is my desire to create a better understanding and awareness of this disease, which can lead to treatment and avoid the last option of transplant.

Romano-001Louis Romano

Credentials: Lou Romano is the owner of HomeWell Senior Care, a home health care agency focused on assisted senior citizens with their activities of daily living. Since 2005, HomeWell has become a community leader in home health care initiatives and currently provides over 7,000 hours of weekly service throughout Bergen County, New Jersey.

In 2011, I attended the Myocarditis Foundation Golf Outing and the poster board stories (Not a Blank Canvas) truly affected me. I remember getting emotional when reading about the struggles, deaths, and success stories of those with Myocarditis. When Joe Rumore asked me to serve on the board of directors, I immediately jumped at the opportunity. Not only because he is a dear friend, but because I know I can help the Foundation make an impact in the fight against Myocarditis.

Jack Price-001Jack Price

Credentials: Dr. Price is a pediatric cardiologist at Texas Childrens Hospital in Houston, TX. He is an expert in pediatric heart failure and critical heart disease and has authored or co-authored over 50 publications on pediatric cardiology. Most of his clinical time is spent treating heart disease in newborns, infants and children in the cardiac intensive care unit and cardiomyopathy clinic. His academicrank is associate professor of pediatrics at Baylor College of Medicine.

Why did you choose to join the board of the Myocarditis Foundation?
I chose to serve on the board because I have a passion for treating children with heart failure, including myocarditis. I hope to improve awareness of this disease, not just among the public but also among my peers and colleagues.

Joel Aranson-001Joel Aranson

Credentials: Founder and Chairman of the Board of National Sporting Goods Corporation (1963 to present). Manufacturers and Importers of Roller Skates, inline Skates and Skate Boards (Chicago Skate Company) as well as Private Label Toys. Offices located in Fairfield, NJ. Graduate of University of Pittsburgh (1958 BBA) Married to Diane Aranson.

Our Son, Jeffrey Grossman, a Philadelphia Lawyer, passed away May 2013. (Giant Cell Myocarditis). I am honored to be a Board Member of the Myocarditis Foundation. May 2013, tragedy hit our family. Our Son, 46 years old, was taken from us due to Giant Cell Myocarditis. I realize the CRITICAL importance of “Raising Awareness” to the General Public, as well as Medical Professionals.

Francine AndreaFrancine Andrea

Credentials: Francine Andrea is the Vice-President of Enrollment Management, Student Affairs and Chief Compliance Officer for Felician University. She is a close friend of a myocarditis survivor and heart transplant recipient.

I have been a follower of the Myocarditis Foundation and supporter of its efforts for many years now. I look forward to working with the Foundation to raise awareness and generate funds for research to put an end to myocarditis as we know it today.

Francine AndreaGiustina Schiano

Credentials: Giustina Schiano is the mother of an adult victim of Viral Myocarditis

I attended the Family Support Meeting in 2016, just a few months after I learned what took my child from me. I observed the outpouring of support to the families from the Myocarditis Foundation. I joined the Foundation so as to help support other family members who have been affected by this devastating disease.

Francine AndreaMichael A. Linn

Credentials:  Michael A. Linn is a Sales Leader for the Instruments division of the Stryker Corporation where he currently manages a team responsible for the New York Orthopedic business. With Stryker since 2005, his extensive background extends to the facial trauma/reconstruction, neurosurgery, and cardiothoracic fields as well. Michael has worked with top hospitals throughout the Northeast, and brings a substantial Healthcare and Medical Device network to the Myocarditis Foundation.

Stephanie Kennan

Credentials: Stephanie Kennan is the Senior Vice President of Federal Affairs, at McGuireWoods Consulting. Ms. Kennan has worked in the health policy arena for over two decades.

Her father died at the age of 42 from Myocarditis. Her interest in joining the foundation comes from understanding how important it is to support patients and their families, and to advance the scientific research needed to find treatments and a cure.

Medical Advisory Board

Akira Matsumori, MD
Professor of Medicine, Department of Cardiovascular Medicine, Kyoto University Graduate School of Medicine, Kyoto, Japan.

Bruce M. McManus, CM, OBC, PhD, MD, FRSC, FCAHS, FACC, FCCS 

Professor Emeritus, UBC Centre for Heart Lung Innovation Founding CEO, PROOF Centre of Excellence   Vancouver, British Columbia, Canada.


Dennis M. McNamara, MD, MS

Professor of Medicine
Director, Center for Heart Failure Research
University of Pittsburgh Medical Center.

Steven D. Colan, MD
Professor of Pediatrics at Harvard Medical School and Director of Clinical Research, Department of Cardiology, Boston Children’s Hospital.

Bettina Heidecker, MD

Head of the Heart Failure and Cardiomyopathies Division at the Charite, Germany; Myocarditis Researcher and previous MF Fellowship Grant Recipient.

DeLisa Fairweather, PhD, FAHA

Director of Translational Research and Associate Professor of Medicine in the Department of Cardiovascular Medicine at Mayo Clinic in Jacksonville, Florida.

Find out how you can get involved and support the Myocarditis Foundation!