Executive Director

Genevieve Rumore, RN, BSN

Credentials: Genevieve Rumore is a Registered Nurse with experience as a Certified Nurse in Critical Care, Adult and Pediatric Emergency Room Care, and Geriatrics. She was also a Certified Director of Nursing for Long Term Care and a State Surveyor of Long Term Care Facilities. Not only does she have work experience in these areas but she also worked closely with cardiologists during her husband’s many years of heart failure. The heart failure was caused by Viral Myocarditis which he developed as a teenager after a bout with Mononucleosis.

I have known my husband since I was 15 years old. Cardiology has always been my main interest since my husband developed Cardiomyopathy as a teenager. I know the suffering, both programmatically and financially that he and our family experienced for so many years dealing with the devastating effects of long term heart failure from myocarditis. After he so miraculously received the gift of a new life with his heart transplant, both he and I devoted ourselves to raising awareness of the disease.

I welcomed the offer to work with the Myocarditis Foundation and can feel for those who reach out to the Foundation for answers. Every time someone thanks me for the work that the Foundation does, I know that what we do is so worthwhile and a much such a needed support system for them.

Board of Directors

Dr. Leslie T. Cooper, MD, Myocarditis Foundation founderLeslie T. Cooper, MD

Credentials: Dr. Cooper is a founder of the Myocarditis Foundation, and has had a career-long focus on myocarditis, particularly giant cell myocarditis. He has published over 50 papers on myocarditis and edited the textbook Myocarditis, From Bench to Bedside. His research focuses on multicenter clinical and translational studies of myocarditis and its major consequence, dilated cardiomyopathy.He serves as a consultant in Cardiovascular Diseases and is the Chief of Cardiology at Mayo Clinic in Jacksonville, FL.He holds the rank of Professor of Medicine at the Mayo Clinic College of Medicine.To view his Mayo Clinic webpage, click here.

I serve on the board because there is no better way to help patients and their families who are impacted by myocarditis. Every time I hear from a grateful family and I know that the information and support that we provide is unique, I am reassured that the time and effort spent on the Myocarditis Foundation activities is worthwhile.

Candace Moose, Myocarditis Foundation Board MemberCandace Moose

Credentials: Candace Moose is a giant cell myocarditis survivor and heart transplant recipient. She is a retired nurse and a wife, mother, and grandmother. She also is a speaker and advocate for organ donation and is the author of the book The Grateful Heart: Diary of a Heart Transplant

I serve on the Board of Directors of the Myocarditis Foundation because I want to put an end to the suffering this disease wreaks on patients and families. I am passionate, driven, and fully committed both programmatically and financially to try to make a difference. This disease caused so much suffering in my family and in every family that contacts us from all over the world. I pray that the work we do will someday result in greater awareness of the disease, faster diagnostics and better treatments leading to more lives saved and decreased suffering.

Joseph RumoreJoseph Rumore

Credentials: Joseph Rumore is the former Managing Director of Agency Reinsurance Companies for the Atlantic Mutual Insurance Companies. Joseph is a heart transplant recipient due to myocarditis.

I am a heart transplant recipient. The transplant was needed as a result of Myocarditis. It is my desire to create a better understanding and awareness of this disease, which can lead to treatment and avoid the last option of transplant.

DeLisa Fairweather, PhD, FAHADeLisa Fairweather, PhD, FAHA

Credentials: Dr. Fairweather is an Associate Professor and myocarditis researcher at Mayo Clinic College of Medicine Graduate School in the Department of Immunology and a adjunct Associate Professor at Johns Hopkins University in the Department of Environmental Health Sciences in the Division of Molecular and Translational Toxicology. Dr. Fairweather is also Director of the Center for Translational Cardiovascular Research at Mayo Clinic in Jacksonville, FL.

I am excited to be a board member of the Myocarditis Foundation so that I can increase awareness of this important disease and facilitate networking to bring breakthroughs in understanding the causes and factors that drive disease progression. My interest in myocarditis began during my PhD studies in Australia. I was intrigued by the question of how infections could cause autoimmune disease, and in particular the autoimmune heart disease myocarditis. After finishing my PhD in Australia I continued this quest at Johns Hopkins University, eventually starting my own laboratory. My lab focuses on understanding how infections and toxins cause myocarditis, dilation and heart failure, and why men develop heart disease differently than women. Answers to these questions will help researchers and clinicians work out how to prevent disease and develop better treatments. As a young researcher I am enthusiastic to see breakthroughs in understanding myocarditis and to make more people aware of its impact on families.

Romano-001Louis Romano

Credentials: Lou Romano is the owner of HomeWell Senior Care, a home health care agency focused on assisted senior citizens with their activities of daily living. Since 2005, HomeWell has become a community leader in home health care initiatives and currently provides over 7,000 hours of weekly service throughout Bergen County, New Jersey.

In 2011, I attended the Myocarditis Foundation Golf Outing and the poster board stories (Not a Blank Canvas) truly affected me. I remember getting emotional when reading about the struggles, deaths, and success stories of those with Myocarditis. When Joe Rumore asked me to serve on the board of directors, I immediately jumped at the opportunity. Not only because he is a dear friend, but because I know I can help the Foundation make an impact in the fight against Myocarditis.

Jack Price-001Jack Price

Credentials: Dr. Price is a pediatric cardiologist at Texas Childrens Hospital in Houston, TX. He is an expert in pediatric heart failure and critical heart disease and has authored or co-authored over 50 publications on pediatric cardiology. Most of his clinical time is spent treating heart disease in newborns, infants and children in the cardiac intensive care unit and cardiomyopathy clinic. His academicrank is associate professor of pediatrics at Baylor College of Medicine.

Why did you choose to join the board of the Myocarditis Foundation?
I chose to serve on the board because I have a passion for treating children with heart failure, including myocarditis. I hope to improve awareness of this disease, not just among the public but also among my peers and colleagues.

Joel Aranson-001Joel Aranson

Credentials: Founder and Chairman of the Board of National Sporting Goods Corporation (1963 to present). Manufacturers and Importers of Roller Skates, inline Skates and Skate Boards (Chicago Skate Company) as well as Private Label Toys. Offices located in Fairfield, NJ. Graduate of University of Pittsburgh (1958 BBA) Married to Diane Aranson.

Our Son, Jeffrey Grossman, a Philadelphia Lawyer, passed away May 2013. (Giant Cell Myocarditis). I am honored to be a Board Member of the Myocarditis Foundation. May 2013, tragedy hit our family. Our Son, 46 years old, was taken from us due to Giant Cell Myocarditis. I realize the CRITICAL importance of “Raising Awareness” to the General Public, as well as Medical Professionals.

randy vannessRandy Vanness

Credentials: Father of myocarditis victim.

After our son passed away from Myocarditis in 2010 we turned to the Foundation for some insight and answers. We found that we were not alone in this and when I was asked to be on the board I was hesitant at first. I am just your average person, but I do have a passion for seeing this disease conquered in my lifetime. I hope to give the rest of the board some insight as to what families that have lost a child are going through. I hope some of my ideas can help spread awareness and help others to cope with their losses. I am proud to be part of a group of individuals that all have one common goal, and that is to help others that have been affected by Myocarditis.

Christopher CorsoChristopher Corso

Credentials: Christopher Corso is the father of a child who contracted myocarditis in May 2015 and continues his battle today.

I am an active executive in the insurance/reinsurance field. My 17 years history as a buyer has been out of the Boston area where I am currently employed at XL Catlin. I recently joined the board in 2015 to assist the foundation in creating an annual foundation event to raise awareness and generate funds for research to put an end to this awful virus.
I want to make a difference for the next time a 12 year old child, like my son, is in the ER with this virus. This is a fight that we can win together, and with your help, we will win the battle against myocarditis.

Francine AndreaFrancine Andrea

Credentials: Francine Andrea is the Vice-President of Enrollment Management, Student Affairs and Chief Compliance Officer for Felician University. She is a close friend of a myocarditis survivor and heart transplant recipient.

I have been a follower of the Myocarditis Foundation and supporter of its efforts for many years now. I look forward to working with the Foundation to raise awareness and generate funds for research to put an end to myocarditis as we know it today.

Medical Advisory Board

Akira Matsumori, MD
Professor of Medicine, Department of Cardiovascular Medicine, Kyoto University Graduate School of Medicine, Kyoto, Japan.

Bruce M. McManus, PhD, MD, FRSC, FCAHS
Professor & Director, The James Hogg iCAPTURE Centre, University of British Columbia-St. Pauls Hospital Scientific Director, The Heart Centre Providence Health Care, Vancouver, British Columbia, Canada.

Dennis M. McNamara, MD
Associate Professor of Medicine; Director, Heart Failure Section; Director, Cardiomyopathy Clinic and Heart Failure Research Program, Cardiovascular Institute at University of Pittsburgh Medical Center Presbyterian, Pittsburgh, PA.

Steven D. Colan, MD
Professor of Pediatrics at Harvard Medical School and Associate Chief of Cardiology at Boston Childrens Hospital.

Bettina Heidecker, MD
Non-invasive cardiology attending
Division of Cardiology
University Hospital Zurich

Find out how you can get involved and support the Myocarditis Foundation!