Genevieve Rumore, RN, BSN
Credentials: Genevieve Rumore is a Registered Nurse with experience as a Certified Nurse in Critical Care, Adult and Pediatric Emergency Room Care, and Geriatrics. She was also a Certified Director of Nursing for Long Term Care and a State Surveyor of Long Term Care Facilities. Not only does she have work experience in these areas but she also worked closely with cardiologists during her husband’s many years of heart failure. The heart failure was caused by Viral Myocarditis which he developed as a teenager after a bout with Mononucleosis.
I have known my husband since I was 15 years old. Cardiology has always been my main interest since my husband developed Cardiomyopathy as a teenager. I know the suffering, both programmatically and financially that he and our family experienced for so many years dealing with the devastating effects of long term heart failure from myocarditis. After he so miraculously received the gift of a new life with his heart transplant, both he and I devoted ourselves to raising awareness of the disease.
I welcomed the offer to work with the Myocarditis Foundation and can feel for those who reach out to the Foundation for answers. Every time someone thanks me for the work that the Foundation does, I know that what we do is so worthwhile and a much needed support system for them.
Operations & Public Relations Manager
Credentials: Melissa is responsible for the day to day operations of the Foundation. Her responsibilities include media outreach, our volunteer program and third-party fundraising activities. Melissa attended the University of Houston, is a mother of three and enjoys crafting
In 2018 I started working with the Foundation and learned about this rare disease called myocarditis. I could not believe how devastating it was to patients and their families, often affecting these otherwise healthy individuals and children without warning. I want to make a difference by helping to raise awareness about this disease and those that are affected by it.
Leslie T. Cooper, MD
Credentials: Dr. Cooper is a founder of the Myocarditis Foundation, has had a career-long focus on Myocarditis, particularly Giant Cell Myocarditis. He has published over 130 original peer-reviewed papers as well as contributing to, and editing books on myocarditis. His research focuses on multicenter clinical and translational studies of myocarditis and its major consequence, dilated cardiomyopathy. In addition to his clinical and research work, Dr. Cooper is a fellow of the American College of Cardiology, The American Heart Association, the European Society of Cardiology Heart Failure Association, The International Society for Heart and Lung Transplantation and the Society for Vascular Medicine and Biology. He serves as a consultant in Cardiovascular Diseases and is the chair of the Cardiovascular Department of Medicine at Mayo Clinic, Jacksonville, Florida. He holds the rank of Professor of Medicine at the Mayo Clinic College of Medicine.To view his Mayo Clinic webpage, click here.
I serve on the board because there is no better way to help patients and their families who are impacted by myocarditis. Every time I hear from a grateful family and I know that the information and support that we provide is unique, I am reassured that the time and effort spent on the Myocarditis Foundation activities is worthwhile.
Credentials: Candace Moose is a giant cell myocarditis survivor and heart transplant recipient. She is a retired nurse and a wife, mother, and grandmother. She also is a speaker and advocate for organ donation and is the author of the book The Grateful Heart: Diary of a Heart Transplant
I serve on the Board of Directors of the Myocarditis Foundation because I want to put an end to the suffering this disease wreaks on patients and families. I am passionate, driven, and fully committed both programmatically and financially to try to make a difference. This disease caused so much suffering in my family and in every family that contacts us from all over the world. I pray that the work we do will someday result in greater awareness of the disease, faster diagnostics and better treatments leading to more lives saved and decreased suffering.
Credentials: Joseph Rumore is the former Managing Director of Agency Reinsurance Companies for the Atlantic Mutual Insurance Companies. Joseph is a heart transplant recipient due to myocarditis.
I am a heart transplant recipient. The transplant was needed as a result of Myocarditis. It is my desire to create a better understanding and awareness of this disease, which can lead to treatment and avoid the last option of transplant.
Credentials: Lou Romano is the owner of HomeWell Cares, a home health care agency focused on assisting senior citizens and others with their activities of daily living. Since 2005, HomeWell Cares has become a community leader in home health care initiatives and currently provides over 7,000 hours of weekly service throughout North Jersey.
Credentials: Dr. Price is a pediatric cardiologist at Texas Childrens Hospital in Houston, TX. He is an expert in pediatric heart failure and critical heart disease and has authored or co-authored over 50 publications on pediatric cardiology. Most of his clinical time is spent treating heart disease in newborns, infants and children in the cardiac intensive care unit and cardiomyopathy clinic. His academic rank is Professor of Pediatrics at Baylor College of Medicine.
Why did you choose to join the board of the Myocarditis Foundation?
I chose to serve on the board because I have a passion for treating children with heart failure, including myocarditis. I hope to improve awareness of this disease, not just among the public but also among my peers and colleagues.
Credentials: Founder and Chairman of the Board of National Sporting Goods Corporation (1963 to present). Manufacturers and Importers of Roller Skates, inline Skates and Skate Boards (Chicago Skate Company) as well as Private Label Toys. Offices located in Fairfield, NJ. Graduate of University of Pittsburgh (1958 BBA) Married to Diane Aranson.
Our Son, Jeffrey Grossman, a Philadelphia Lawyer, passed away May 2013. (Giant Cell Myocarditis). I am honored to be a Board Member of the Myocarditis Foundation. May 2013, tragedy hit our family. Our Son, 46 years old, was taken from us due to Giant Cell Myocarditis. I realize the CRITICAL importance of “Raising Awareness” to the General Public, as well as Medical Professionals.
Credentials: Francine Andrea was Vice-President of Enrollment Management, Student Affairs and Chief Compliance Officer for a large university. She is a close friend of a myocarditis survivor and heart transplant recipient.
I have been a follower of the Myocarditis Foundation and supporter of its efforts for many years now. I look forward to working with the Foundation to raise awareness and generate funds for research to put an end to myocarditis as we know it today.
Credentials: Giustina Schiano is the mother of an adult victim of Viral Myocarditis
I attended the Family Support Meeting in 2016, just a few months after I learned what took my child from me. I observed the outpouring of support to the families from the Myocarditis Foundation. I joined the Foundation so as to help support other family members who have been affected by this devastating disease.
Michael A. Linn
Credentials: Michael A. Linn is a Sales Leader for the Instruments division of the Stryker Corporation where he currently manages a team responsible for the New York Orthopedic business. With Stryker since 2005, his extensive background extends to the facial trauma/reconstruction, neurosurgery, and cardiothoracic fields as well. Michael has worked with top hospitals throughout the Northeast, and brings a substantial Healthcare and Medical Device network to the Myocarditis Foundation.
As a longtime friend of a Viral Myocarditis survivor and heart transplant recipient, and a supporter of the Myocarditis Foundation, I have been able to learn extensively about the impact Myocarditis can have and the randomness of the disease itself. I believe passionately that the efforts of the foundation can serve as a catalyst to reduce such randomness, and work towards more preventative measures to predict and combat Myocarditis.
Credentials: Stephanie Kennan is the Senior Vice President of Federal Affairs, at McGuireWoods Consulting. Ms. Kennan has worked in the health policy arena for over two decades.
Her father died at the age of 42 from Myocarditis. Her interest in joining the foundation comes from understanding how important it is to support patients and their families, and to advance the scientific research needed to find treatments and a cure.
Credentials: Gary Kubera spent over 30 years as a chemical industry executive and CEO before (semi) retiring in 2017. He is now engaged as an industry investment advisor, consultant and an executive coach.
Gary is happy to bring his background on organization and strategy to the Myocarditis Foundation.
Bettina Heidecker, MD
Credentials: Head of Heart Failure and Cardiomyopathies at the Charite Hospital, Berlin Germany; Myocarditis Researcher. Previous MF Fellowship Grant Recipient
I have a passion for the study and treatment of myocarditis. My goal is to detect the disease at an early stage and obtain the best possible outcome for each individual patient. – www.bheidecker.com/en
Medical Advisory Board
Akira Matsumori, MD
President, International Society of Cardiomyopathies, Myocarditis and Heart Failure
Visiting Director, Clinical Research Center, National Hospital Organization Kyoto Medical Center, Japan
Dr. Justin Godown, MD
Medical Director of Pediatric Cardiomyopathy and Cardio-Oncology
Practicing Pediatric Cardiologist Monroe Carell Jr. Children’s Hospital at Vanderbilt Nashville, TN
Bruce M. McManus, CM, OBC, PhD, MD, FRSC, FCAHS, FACC, FCCS
Professor Emeritus, UBC Centre for Heart Lung Innovation Founding CEO, PROOF Centre of Excellence Vancouver, British Columbia, Canada.
Dennis M. McNamara, MD, MS
DeLisa Fairweather, PhD, FAHA
Wilson Tang, M.D.
Dr. Tang is a Professor of Medicine at Cleveland Clinic Lerner College of Medicine at Case Western Reserve University. Practicing heart failure and transplant cardiologist at the Cleveland Clinic, specializing in cardiomyopathies and myocarditis.
Enrico Ammirati, M.D., PhD.
Dr. Ammirati is a Assistant Professor at the School of Medicine at the Vita-Salute San Raffaele University in Milano, Italy. He is a clinical cardiologist who subspecializes in heart failure and myocarditis at the DeGasparis Cardio Center and Transplant Center at the Niguarda Hospital in Milano, Italy.