Pediatric
Holden’s Story
Holden Ryker Sokalsky was born in June 2019 alongside his two sisters. Having spontaneous triplets definitely threw us for a loop, but our sweet Holden was such an easy baby.…
Banner’s Story
Banner was our oldest child, born May 6, 2011 in Baltimore, right before our family relocated to Turkey. A precocious child with an expansive vocabulary, he was a born leader,…
Jaylyn’s Story
Jaylyn Deandres Harris, Died at 4 years old on July 16th, 2008 On April 16, 2004 God breathed life into a precious baby boy. He was named Jaylyn Deandres Harris.…
Millie Rose’s Story
My daughter, Camila “Millie” Rose Giani was a happy, healthy, energetic ray of sunshine. She had a donut party for her fifth birthday on September 14, 2019. She rarely got…
Sarah’s Story
On Sunday, November 24th, 2019, Sarah came down with a virus. She complained of a headache and broke out with a fever. It was nothing high, just a typical viral…
Mary’s Story
On March 31, 2019, my husband and I lost our oldest child and only daughter to Myocarditis. Half-way through the day on Friday March 29, Mary Elizabeth (we called her…
Lillie’s Story
Lillie Nicole Hall was a vibrant, happy and very loving 3-year-old little girl. She had just started her first dance class – this princess loved music and expressing it in…
Beau’s Story
Our life forever changed July 15, 2017. Before that Beau was a happy two-year-old who didn’t get sick often. Before that Beau was a happy two-year-old who didn’t get sick…
Rian Jones-Cook’s Story
Precious 4 month old loses battle to Viral Myocarditis Rian was a Thanksgiving baby, born on November 16, 2015. Our family gathered and celebrated his arrival with food and festivities.…
Knox’s Story
Viral Myocarditis claimed this 2 1/2 year-old’s-life… Knox Peterson Schwarz was a vibrant, joyful, and loving 2 1/2-year-old boy. He loved chasing after his big brother and sister and swinging…
Connor’s Story
Cough and Flu-like symptoms caused by myocarditis claim the life of an 8 year-old boy He was seen by his doctor for a mild cough… Connor Andrews was an 8-year-old…
Christopher’s Story
Accomplished 10-year-old Pianist Loses Fight to Myocarditis His parents are making a life long promise to educate others about Myocarditis We once had a perfect life, a completely bright future…
Roman’s Story
Precious Boy Loses Battle with Myocarditis at the Tender Age of 17 Months Roman Brown’s Memory Lives On From the moment Roman aka Romeo arrived in the world I knew…
Destin’s Story
Precious Two-Year-Old Suddenly Taken by Myocarditis As told by Destin’s father My name is Deon Johnson. I am the proud father of three until recently. I lost my youngest at…
Quinn’s Story
Beloved Youngest of Four is Lost Suddenly to Myocarditis Quinns Family Turns his Love of Hockey into an Awareness & Fundraising Event Quinn is the youngest of our four…
Kamryn’s Story
Myocarditis Takes 16-Month-Old Angel Kamryn’s family turns to advocacy in the wake of their loss As told by Kamryn’s mother, Keenna My baby girl Kamryn Faith, 16 months old,…
Elysa’s Story
Elysa’s Parents on a Mission to Spread Awareness The Rojas family is determined to teach others about Myocarditis As told by Elysa’s Parents, Jana & Jamie Elysa Louise Rojas…
Lucy B’s Story
Myocarditis Takes this Happy, Young Girl from her Family Lucy B’s spirit lives on in her friend’s and family Lucy Boslem or Lucy B as she was known to many…
Julian’s Story
Julian’s Story Julian, an active loving little boy, was taken suddenly by myocarditis As told by Julian’s mother Julian was a beautiful person inside and out. He was full of…
Rylan’s Story
My Rylan Rylan’s family remembers their sweet, kind boy My beautiful little 4 year old son Rylan lost his life to Myocarditis. The day my heart and soul was ripped…
Melita’s Story
Little Girl Takes Her Last Breath in Her Mother’s Arms the Same Day She Developed Flu-Like Symptoms Family Works with the Myocarditis Foundation to Ensure Many More “Melita’s Moments” As…
Catherynne’s Story
Flu-Like Symptoms Caused by Myocarditis Claim the Life of a Little Girl Cathrynne’s Family Describe Her as Beauty and Spunk in a Small Package Cathrynne was such a joy to…
Melisa Sofia’s Story
Myocarditis Takes the Life of the Little Girl with the Biggest Heart in the School Melisa Sofia’s Memory Lives On Copy consolidated from article published Aug. 14, 2011 Jay Levin,…
Logan’s Story
Find Out Why a Six-Year-Old Boy Died Instantly and Unexpectedly in His Mother’s Arms Logan Will Forever be in the Hearts of Family and Friends As told by Logan’s Mom,…
Luke’s Story
Find Out How Suddenly and Unexpectedly Myocarditis Took the Life of a Young Boy Luke’s Vibrant Spirit Lives on with Family and Friends As told by Joe & Amy Skowronski –…
Older Children and Young Adults
Nolan’s Story
Nolan was just 17, less than 2 months away from his 18th birthday, when he was found unresponsive in his bedroom. CPR was started, but too much time had already…
Leanna’s Story
In early June, 2012, Leanna was treated for flu-like symptoms by her pediatrician, however, the symptoms never really went away. Leanna’s energy was low and she complained of shortness of…
Shelby Rae’s Story
Our nightmare started March 2019, but we did not know we were in the nightmare. Shelby went to the hospital because both arms were going numb. Shelby was a production…
Lexi’s Story
Our sweet, 16-year-old daughter, Lexi had bright blue eyes, a beautiful smile she shared with everyone she met, and an outgoing personality. She loved playing tennis and basketball, but her…
Evin’s Story
I lost my first born, handsome, intelligent, creative, sweet, soft spoken, kind, 20-year-old son Evin, on 01/01/19 suddenly and unexpectedly. As a small child and up until his teens, he was always creating random…
Shaelee’s Story
On Jan 14, 2018 our lives changed forever. My daughter, Shaelee, was 20 yrs. old and a junior at Temple University studying to go to grad school to be a Physician Assistant. Shaelee…
Ryan’s Story
He was only 21 years old. He was brave. He was a fighter and a warrior. He died a sudden and tragic death due to myocarditis. His name was Ryan…
Jessi’s Story
Sept 10 2000 changed my life forever. I received the phone call no parent should ever have to take. Your daughter has been rushed to the ER. Moments earlier she…
Austin’s Story
Taken In the Prime of His Life and at the Top of His Game Austin Lee Vonckx’s Story Austin was 4 weeks into his freshman year at Florida Gulf Coast…
Tyler’s Story
Tyler, Your Beautiful Light Will Shine in Our Hearts Forever Tyler Rosenberg’s Story On May 21, 2014 we lost our beautiful, healthy, and active 19-year-old son Tyler to viral…
Thom’s Story
College Senior Loses Life to Myocarditis Thom’s Family Self-Publishes a Book in Honor of Thom in Hopes of Raising Funds for Research It was the first day of November 2013,…
Christopher’s Story
Learn How Myocarditis Took the Life of a Young College Student Christopher’s Family is Now Dedicated to Myocarditis Awareness He never treated anyone differently. Everyone was a friend. He taught…
Dominique’s Story
Young Woman is Taken Suddenly, Leaving Loved Ones to Remember Her Many Life Lessons She Lived Her Life By “All I can do is my best; Im not going to…
Staci’s Story
Leaving a Legacy: A Heart to Change The Staci Stephens Story As told by Staci’s Mother, Kristen People think that when they have children that they will always raise…
Rhett’s Story
Myocarditis Strikes a Young, Ambitious Teen Rhett’s family remembers their beloved son and brother As told by Rhett’s Family, Steve, Vickie and brother Ryne A gleam in his eye,…
Kristen’s Story
Future Veterinarian Lost Suddenly to Myocarditis Kristen’s family tells her story As told by Kristen’s Parents, Annie & David Myocarditis. A word, a disease that no one in our…
Jessi’s Story
Myocarditis Strikes Vivacious 19-Year-Old Jessi was taken away just as she was beginning her college career As told by Jessi’s mother, Kim Sept 10, 2000 changed my life forever.…
Jonathan’s Story
The Iacuaniello Family Remembers Jonathan Jonathan was only 23 when myocarditis tragically took him from his family. In loving memory of Jonathan – Ken, Nancy, & Kristen Jonathan Kenneth Iacuaniello…
Mackenzie’s Story
Young Honor Student Taken by Myocarditis Mackenzie Moreland’s Story My daughter Mackenzie Renee Moreland passed away from Myocarditis on 10/29/2011. We did not find out the cause of death until…
Caitlyn’s Story
Little Girl Makes a Big Impact on Others During Her Short Life Caitlyn Made Every Day a Great One As told by Lillian and John Vincent Caitie was a wonderful…
Andy’s Story
One Month Short of 15, Young Man is Suddenly and Inexplicably Gone Andy’s Family Works to Spread Awareness and Fund Research on Myocarditis As told by Andy’s parents, Victor and…
Danielle’s Story
Myocarditis Claims the Life of a Young Girl Following Cold-Like Symptoms Danielle’s Parents Hope to Help Prevent this Tragedy from Happening to Others As told by Danielle’s parents, Steve and…
Devin’s Story
Athletic, Healthy 22-Year-Old Died in His Sleep Devin’s Family and Friends Hold Annual Event in His Honor Devin Kravitz, born January 31, 1984, grew up in Leicester, Massachusetts. A very…
Aaleigha’s Story
The Tragic Death of Young Girl Inspired a Rock Concert Fundraiser Aaleigha’s Friends and Family Respond to Death with Action Ashley and Amber Young, sisters from Pittsburgh, Pennsylvania, lost their…
Garret’s Story
Family Lost Their Beloved First-Born Son Unexpectedly to Viral Myocarditis Garret’s Family Now Feel Awareness and Education are Key As told by Garret’s parents Garret Lee Hodges was a loving,…
Jeremy’s Story
Boy’s Life Ends Prematurely with No Warning Sign Jeremy’s Legacy Lives on in His Family and the Lives He Touched As told by Brian Fishman, Jeremy’s younger brother My…
Abiah’s Story
Discover How Myocarditis Stole the Life of 11-Year-Old Abiah Abiah Leaves a Legacy of Love, Peace and Compassion As told by Abiah’s mom, Patricia McElveen Fifth grader, 11-yr-old Abiah, was…
Adult
Sergei’s Story
Sergei Aftandelian’s Story Los Angeles, California Flu Symptoms Led to the Sudden Death of this Young Father and School Principal As told by Sergei’s Family Sergei was a force…
Brandon’s Story
Learn How Myocarditis Took This Healthy Young Man’s Life Just Before His Milestone Birthday As told by Brandon’s family: Ed (Dad), Cathy (Mom), Brittany (Sister), Derek (Brother-in-law) Brandon’s life was…
Christopher’s Story
Christopher Emmanuel Leveque was born on August 15th 1997. He arrived earlier than expected, one month premature and even as a preemie he showed signs of great strength. Chris was…
Shivam’s Story
Never look back unless you are planning to go that way (Henry David Thoreau)… and he did not look back This is the story of our beloved son Shivam Chetan…
Jeremy’s Story
Our family wants everyone to hear Jeremy’s story. We don’t want another family to lose someone they love to this disease. On September 11, 1987, our brother and my parent’s…
Lee’s Story
A Mother’s life was changed forever… On November 22, 2015 this mother’s life was changed forever. In the still of early morning, I knew the piercing sound of the phone…
Shannon’s Story
Shannon Mauldin’s Story El Reno, Oklahoma Shannon, was a healthy 31-year-old mother, wife, daughter, sister, and aunt, who every one depended on for one thing or another. Shannon was only…
Clayton’s Story
Young Healthy Father Dies Suddenly A mothers goal to raise awareness about this deadly disease to help others As told by his mom, Patty Edgeman We lost our son to…
Ashley’s Story
Vibrant and Beautiful Young Woman is Lost Tragically to Myocarditis Ashleys Family and Many Friends Honor her Legacy through Awareness and Fundraising Events As told by Ashley’s mother, Kathy Burgauer…
Brian’s Story
Young Man’s Heart Stops While Playing Basketball with Friends Brian was only 23 when myocarditis took him so suddenly from his friends and family. As told by Brian’s mother, Maria…
John’s Story
Young Man Training for a Marathon Becomes a Victim of Myocarditis John was a healthy 31 year old when he was taken so suddenly by myocarditis As told by his…
Sarah Knight’s Story
A Young Kindergarten Teacher’s Family and Community Remember Her Sarah’s family share the mark she made on the world On September 26, 2011, one word – Myocarditis – changed our…
Ashley’s Story
Myocarditis Suddenly Claims the Life of Beloved Wife, Daughter, Sister, Aunt, Niece and Friend Ashley’s Life Suddenly Ended as it Was Beginning As told by Ashley’s sister, Leslie Where do…
Becca’s Story
Cold Symptoms Led to the Death of a Young, Beautiful Woman Becca Has a Permanent Place in the Hearts of Loved Ones As told by Becca’s family Rebecca, or Becca…
Brad’s Story
Find Out How a Healthy Young Man Lost His Life After Being Sick for Only Two Days Brad’s Family Hopes to Help End Other Tragedies As told by Brad’s family…
Michael’s Story
Discover How Viral Myocarditis Claimed the Life of a Healthy 25-Year-Old Michael’s Family Does Not Want His Life to be in Vain As told by Michael’s mom, Sylvia Kern Michael…
Tim’s Story
Discover How a Healthy 30-Year-Old Died within 15 Minutes Tim’s Flu-Like Symptoms Led to Sudden Death As told by Tim’s wife, Angela Burke On February 16, 2010 my life was…
Mark’s Story
Find Out How Myocarditis Stole the Life of a Young, Athletic Father Marks Family Raises Awareness and Money in His Honor On March 25, 2011, dozens of the 14,000 runners…
Jolanda’s Story
Giant Cell Myocarditis Had Never Been Seen in a Pregnant Woman Jolanda and Her Unborn Baby’s Lives Were Taken My sister, Jolanda, and I grew up in a typical Dutch…