Dedicated to Saving More Lives Through Myocarditis Education and Scientific Advancement
About the Myocarditis Foundation
Although it’s classified as rare, myocarditis is a form of heart disease that affects thousands of American adults and children each year. At the Myocarditis Foundation, we are dedicated to raising global awareness about myocarditis, which goes widely underdiagnosed and affects otherwise healthy individuals. By increasing public knowledge about this disease, it’s our mission to assist in the scientific advancement of myocarditis medicine.
Founded by Leslie T. Cooper, M.D., and Candace Moose as a private 501(c)3 non-profit organization since 2005, the Myocarditis Foundation provides resources for patients, their families, healthcare professionals, and researchers alike. Ultimately, we are driven by the goal of saving the lives of those affected with this heart disease, and this is how we do it.
Myocarditis is characterized by the inflammation of the heart muscle, which enlarges and weakens the heart. Scar tissue often develops from this inflammation, forcing the heart to work harder as it pumps blood and oxygen throughout the body. Some of the common symptoms of myocarditis include chest pain, abnormal heart rhythm, and shortness of breath.
Uniquely, this disease often affects young, athletic people but can also develop in infants, children, and adults of all ages. At the Myocarditis Foundation, we maintain a listing and contact on The National Organization for Rare Diseases (NORD) database, helping to spread awareness about this disease despite its rare classification.
As the third leading cause of sudden death in children and young adults, myocarditis is a disease that is more than worthy of attention. However, many people, including healthcare professionals, are unfamiliar with it. That’s why we offer the following resources for those directly affected by myocarditis and the professionals who operate on the frontlines of treatment and research:
Resources for Patients and Their Families
When a myocarditis diagnosis is given, both patients and their loved ones are deeply affected. To help them cope, we offer several educational and supportive resources, including:
- FAQ page with research articles: Here, patients and their families can learn the facts about myocarditis.
- Patient and family resources: This page provides informational brochures, links to relevant websites, grief and loss resources, and more.
- Patient and family support: Patients with myocarditis and their families can explore different sources of support, including our Inspire Online Myocarditis Community.
Resources for Caregivers
We sponsor conferences and lectures, as well as host webinars, where physicians can learn more about the symptoms, diagnosis, and treatment of myocarditis. Aside from these efforts, we also offer several resources for healthcare professionals in the hopes that we can better equip them as they care for patients with this disease.
Resources for Researchers
To attain diagnostic and treatment measures that are safe and effective, researchers must do their part at learning more about myocarditis. To help support them, the Myocarditis Foundation offers research grants and partnered fellowships to help fund the dedicated efforts of recipients.
At the Myocarditis Foundation, our team is comprised of our Board of Directors, generous corporate donors, and individual supporters. One of our co-founders is Candace Moose, who details her experience as a heart transplant recipient in her book, The Grateful Heart: Diary of a Heart Transplant. Together, we form a foundation driven to help people with myocarditis live comfortably and attain informed medical care.
We are funded by grants, foundations, programs, groups, and individuals like you. To learn how you can donate to the Myocarditis Foundation and support our work today, contact us at 281-713-2962. You can also learn more about how our organization was founded by watching the video below.