Helping You Get Answers
Resources for Myocarditis Patients and Families
In addition to the resources listed below, information about myocarditis is available through your local library, bookstores and the Internet. Except for information and resources supplied by Mayo Clinic, Mayo Clinic does not endorse the following organizations or resources. This list is not comprehensive.
Most resources listed below can be found on the Internet through your favorite search engine or through the Internet addresses listed below. Talk with your health-care provider about how to contact specific resources.
Please note that these Internet listings do not reflect the Foundations endorsement of the organizations, their products or services. The Foundation also cannot guarantee the accuracy or appropriateness of the sites for you or your familys situation.
Myocarditis Foundation Brochures
- Myocarditis and Giant Cell Myocarditis Brochure (PDF, 250 KB)
- Pediatric Myocarditis Brochure (PDF, 285 KB)
- Be Alert to Myocarditis in Children: A Guide For Physicians (PDF, 372 KB)
- Adult Myocarditis: Recognition and Diagnosis (PDF, 265 KB)
- Myocarditis and Sudden Death Fact Sheet (PDF, 117 KB)
- The Myocarditis Foundation (PDF, 130 KB)
- The Mayo Clinic
- U.S. Department of Health and Human Services
- National Library of Medicine
- Stop Sarcoidosis
- NORD: Myocarditis
- NORD: Giant Cell Myocarditis
Mayo Clinic Resources
American Heart Association
7272 Greenville Avenue
Dallas, TX 75231-4596
Tel: (214) 373-6300
Fax: (214) 373-0268
Toll Free: 1-800-242-8721
Outside US: +1 (214) 570-5978
Also see: www.childrenscardiomyopathy.org & www.clinicaltrials.gov
British Heart Foundation
Greater London House
180 Hempstead Road
London, NWI 7AW
NIH/National Heart, Lung and Blood Institute Information Center
9000 Rockville Pike
Bethesda, MD 20892
Phone #: (301) 496-4000
Childrens Cardiomyopathy Foundation
HFSA: Heart Failure Society of America
- Three Kings Ministries – Chris Ann Waters: Grief Specialist: Chris Ann Waters is a grief specialist and gave an inspiring talk at the Myocarditis Foundation’s 2014 Family Support Meeting. Her resources can be found on this website, including her book order form.
- Grief Net: an internet community of people dealing with the grief of losing a loved one. They have services for children up through adults.
- The Compassionate Friends: a website offering support to family members after the death of a child. Specialized support for parents, siblings, grandparents, and stepparents.
- Hospice: Hospices bereavement section provides information, resources, and articles for those who are grieving the loss of a loved one.
- Journey of Hearts: This site combines elements of medicine, psychiatry, and the arts to provide resources and support to those who have experienced loss.
- Help Guide: This offers ideas and ways to support a person who is grieving
- The Dougy Center: This is a national center for grieving children and their families. It offers useful information and articles as well as a search feature to find grief centers near you.
- The Heart Failure Society of America
- National Institutes of Health Genetic and Rare Diseases Information Center
- The National Organization of Rare Disorders