Helping You Get Answers

Resources for Myocarditis Patients and Families

In addition to the resources listed below, information about myocarditis is available through your local library, bookstores and the Internet. Except for information and resources supplied by Mayo Clinic, Mayo Clinic does not endorse the following organizations or resources. This list is not comprehensive.
Most resources listed below can be found on the Internet through your favorite search engine or through the Internet addresses listed below. Talk with your health-care provider about how to contact specific resources.

Please note that these Internet listings do not reflect the Foundations endorsement of the organizations, their products or services. The Foundation also cannot guarantee the accuracy or appropriateness of the sites for you or your familys situation.

Myocarditis Foundation Brochures

Internet Resources

Mayo Clinic Resources

Organizations

American Heart Association

7272 Greenville Avenue
Dallas, TX 75231-4596
Tel: (214) 373-6300
Fax: (214) 373-0268
Toll Free: 1-800-242-8721
Outside US: +1 (214) 570-5978
Email: inquire@heart.org
Internet: www.americanheart.org
Also see: www.childrenscardiomyopathy.org & www.clinicaltrials.gov

British Heart Foundation

Greater London House
180 Hempstead Road
London, NWI 7AW
Internet: www.bhf.org.uk

NIH/National Heart, Lung and Blood Institute Information Center

NIH
9000 Rockville Pike
Bethesda, MD 20892
Phone #: (301) 496-4000
Fax: (301)251-1223
Email: nhlbiinfo@rover.nhlbi.nih.gov

Childrens Cardiomyopathy Foundation

P.O. Box 547
Tenafly, NJ 07670 USA
Tel: 866-808-CURE (2873)
Fax: (201)227-7016
Email: info@childrenscardiomyopathy.org
Internet: www.childrenscardiomyopathy.org

HFSA: Heart Failure Society of America

6707 Democracy Boulevard
Suite 935
Bethesda, Maryland 20817
Phone: 301-312-8635
Fax: 888-213-4417
Email: info@hfsa.org
Website: hfsa.org

Grief Resources

  • Three Kings Ministries – Chris Ann Waters: Grief Specialist: Chris Ann Waters is a grief specialist and gave an inspiring talk at the Myocarditis Foundation’s 2014 Family Support Meeting. Her resources can be found on this website, including her book order form.
  • Grief Net: an internet community of people dealing with the grief of losing a loved one. They have services for children up through adults.
  • The Compassionate Friends: a website offering support to family members after the death of a child. Specialized support for parents, siblings, grandparents, and stepparents.
  • Hospice: Hospices bereavement section provides information, resources, and articles for those who are grieving the loss of a loved one.
  • Journey of Hearts: This site combines elements of medicine, psychiatry, and the arts to provide resources and support to those who have experienced loss.
  • Help Guide: This offers ideas and ways to support a person who is grieving
  • The Dougy Center: This is a national center for grieving children and their families. It offers useful information and articles as well as a search feature to find grief centers near you.

Other Resources

Find out how you can get involved and support the Myocarditis Foundation!