What a small world we live in when an article on a rare disease all too close to our hearts (no pun intended) is published in a large newspaper Sunday Magazine section under a section described as “Medical Mysteries and the Art of Diagnosis.”
The woman that this speaks of recently contacted the Myocarditis Foundation with her story as well…she is a Giant Cell Myocarditis Survivor…yes, a survivor!
Just a few years ago, she most likely would have been a victim to this disease. The treatments that have resulted from the research into this disease as well as the education and awareness of it to the medical community have truly made a huge difference in the outcomes. Please see how her story progressed from her initial medical examination to the actual diagnosis weeks later. While we would like to see that timeframe be much less from her initial treatment to a correct diagnosis, the correct things did occur…the treating facility knew something serious was happening, they knew that they couldn’t treat it and moved her forward to a potential place that could, rather than send her home thinking it was a fluke… The follow-up treatment also progressed her to a higher level of care and finally to the correct diagnosis and treatment.
We have been so very blessed to hear of more survivors lately than ever before to this so often deadly disease that just a few short years ago did not have a treatment plan…
Please help us through your donations to the Myocarditis Foundation to support our research, educate the medical community and find a cure for all kinds of Myocarditis…
Knowledge Nurtures Hope…Education is the key to early diagnosis and improved outcomes…
