We are pleased to share that Kiniksa has officially launched the RESONANCE Patient Registry for Recurrent Pericarditis. The RESONANCE registry is a voluntary patient registry database led by physician-researchers with experience in managing patients with recurrent pericarditis. Physicians, patients, and patient advocates contributed to the finalization of the priority data to be captured in the registry, in partnership with Kiniksa. This registry intends to increase the understanding of recurrent pericarditis by encouraging the collaboration and sharing of information and expertise.
The RESONANCE registry is open to patients of all ages who present with an initial acute pericarditis episode and at least one recurrence after the initial diagnosis. It is expected that approximately 20 registry sites, located in the US, will participate in the initial start-up phase in 2021.
Please go to the link to learn more: https://resonance-pericarditis-registry.com/