An investigator’s report on this was published in the May 27, 2021 issue of the New England Journal of Medicine. Researchers from around the world, some whom are on or…
The Myocarditis Foundation, in collaboration with researchers from the Mayo Clinic in Rochester, Minnesota, and the Mayo Clinic in Jacksonville, Florida, is conducting a study to identify risk factors for…
The Myocarditis Foundation had their latest virtual Family Meeting with almost 90 patients and families from all over the globe on Saturday May 1, 2021. Patients and Myocarditis Families from…
We are having another chat with our Cardiologists, both Pediatric and Adult, and will be accepting questions until April 19th to share with them for discussion. Our distinguished international panel…
In 2018, NORD (National Organization for Rare Disorders) adopted a set of operating practices to ensure that its member organizations maintain ethical standards and integrity from industry and other influences.…
On March 18, 2021, Kiniksa Pharmaceuticals received approval from the U.S. Food and Drug Administration (FDA) of ARCALYST (rilonacept) for the treatment of recurrent pericarditis and reduction in risk of…
In a telephone interview recently with Dr. Leslie Cooper, regarding the updated frequency of the Global Myocarditis Burden, he explained that while the numbers appear to have gone down it…
Tyler Debusschere’s brother, Jackson, fought and survived Giant Cell Myocarditis a little over 5 years ago. As a teenager, it was very difficult for him to deal with the restrictions…
It has been a year now that we have heard about COVID-19 and the potential risks to the heart from the virus. As the year progressed, the thoughts about the…
It was early January 2021 when I started having some cough, chest pain and difficulty breathing. It wasn’t too bad, but I knew it wasn’t normal. I had a COVID Test…
