Toward a Cure

Thanks to our donors and volunteers, no one is alone in the fight against myocarditis. Ready to get involved? Contact the Myocarditis Foundation for more information or make a donation today.


The Myocarditis Foundation is led by world-renown physicians, researchers and patients who volunteer their time. It funds research fellowship projects and partners with researchers in order to improve diagnosis and find new therapies.


Our greatest challenge going forward is the lack of information about myocarditis. But there is hope- the Myocarditis Foundation is raising awareness by sponsoring national and international conference sessions, supplying physicians with recent findings, and supporting family-sponsored fundraising /awareness events.

Family Support

If you've been diagnosed with myocarditis or giant cell myocarditis, you are not alone. Although under-diagnosed, myocarditis affects otherwise healthy people each year and is a leading cause of sudden death.

About Myocarditis

About Myocarditis

Myocarditis is classified as a rare disease but is estimated to affect thousands of adults and children in the U.S. and around the world each year.

About Giant Cell Myocarditis

About Giant Cell Myocarditis

If you ask the average person to define giant cell myocarditis, there’s a good chance they’ll be unable to. The same goes for a majority of physicians.

About Pericarditis

About Pericarditis

Pericarditis is a condition that affects the pericardium, a thin membrane that surrounds your heart. When pericarditis develops…

10 Questions to Ask Your Doctor if You Suspect You Have Myocarditis

What Happens When a Virus Hijacks Your Heart?

% More Men Than Women
32nd Leading Cause of Death Worldwide
% of Sudden Death in USA
Cases in 2019
Nolan’s Story

Real Life Story

Nolan was just 17, less than 2 months away from his 18th birthday, when he was found unresponsive in his bedroom. CPR was started, but too much time had already passed, and it was too late.

This was a complete shock. Nolan did not report any symptoms to his parents in the weeks leading up to his cardiac arrest. About a week before he died, he mentioned to his cousins that he was tired and that his heart was racing. He’d had a viral illness about a month before, nothing unusual, that had already been forgotten. He was a healthy, athletic, and energetic boy who could run and ski for miles without getting winded.

After extensive testing of Nolan’s heart, myocarditis was found in the AV node. This area controls the heart’s electrical activity. The myocarditis caused a sudden, fatal arrythmia. The viral illness was most likely the cause of the myocarditis.

Nolan was exceptional and unique in every way. He loved adventures and thoroughly enjoyed the outdoors of Michigan’s Upper Peninsula, where he was born and raised. He was a talented skier, mountain biker, and photographer. He also enjoyed weightlifting. He was an avid New England Patriots football fan. He had a kind, generous soul with a love for his family like no other. He will be forever loved and missed by his parents and three younger sisters, along with many friends and family.



Myocarditis: Entering the Mainstream

Dr. Leslie Cooper recently had a paper published in “Circulation”, an American Heart Association Journal, on “Myocarditis: Entering the Mainstream”. Read about the first description of myocarditis in 1837, to the…

2024 Myocarditis Nomenclature Meeting Baltimore, Maryland on March 23rd

In 1986, a group of 8 cardiac pathologists (who were known as the Dallas Panel), made an attempt to establish uniform criteria for the diagnosis of myocarditis in heart biopsy…

Embracing Rare: Myocarditis and the Power of Sharing

As Rare Disease Day approaches on February 29th, it’s a moment for reflection, awareness, and most importantly, unity. In the vast landscape of medical conditions, some are so rare that…

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(281) 713-2962
800 Rockmead Drive, Suite 155
Kingwood, TX 77339
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