Toward a Cure

Thanks to our donors and volunteers, no one is alone in the fight against myocarditis. Ready to get involved? Contact the Myocarditis Foundation for more information or make a donation today.

Research

The Myocarditis Foundation is led by world-renown physicians, researchers and patients who volunteer their time. It funds research fellowship projects and partners with researchers in order to improve diagnosis and find new therapies.

Awareness

Our greatest challenge going forward is the lack of information about myocarditis. But there is hope- the Myocarditis Foundation is raising awareness by sponsoring national and international conference sessions, supplying physicians with recent findings, and supporting family-sponsored fundraising /awareness events.

Family Support

If you've been diagnosed with myocarditis or giant cell myocarditis, you are not alone. Although under-diagnosed, myocarditis affects otherwise healthy people each year and is a leading cause of sudden death.

About Myocarditis

About Myocarditis

Myocarditis is classified as a rare disease but is estimated to affect thousands of adults and children in the U.S. and around the world each year.

About Giant Cell Myocarditis

About Giant Cell Myocarditis

If you ask the average person to define giant cell myocarditis, there’s a good chance they’ll be unable to. The same goes for a majority of physicians.

About Pericarditis

About Pericarditis

Pericarditis is a condition that affects the pericardium, a thin membrane that surrounds your heart. When pericarditis develops…

10 Questions to Ask Your Doctor if You Suspect You Have Myocarditis

What Happens When a Virus Hijacks Your Heart?

0
% More Men Than Women
0
32nd Leading Cause of Death Worldwide
0
% of Sudden Death in USA
0
Cases in 2019
calendar

Upcoming Events

2024 Myocarditis Foundation Family Conference, July 11-14, Dallas, Tx
Thu, Jul 11
2024 Myocarditis Foundation Family Conference, July 11-14, Dallas, Tx
17th Annual Myocarditis Foundation Golf Outing
Mon, Aug 12
17th Annual Myocarditis Foundation Golf Outing
Nolan’s Story

Real Life Story

Nolan was just 17, less than 2 months away from his 18th birthday, when he was found unresponsive in his bedroom. CPR was started, but too much time had already passed, and it was too late.


This was a complete shock. Nolan did not report any symptoms to his parents in the weeks leading up to his cardiac arrest. About a week before he died, he mentioned to his cousins that he was tired and that his heart was racing. He’d had a viral illness about a month before, nothing unusual, that had already been forgotten. He was a healthy, athletic, and energetic boy who could run and ski for miles without getting winded.


After extensive testing of Nolan’s heart, myocarditis was found in the AV node. This area controls the heart’s electrical activity. The myocarditis caused a sudden, fatal arrythmia. The viral illness was most likely the cause of the myocarditis.


Nolan was exceptional and unique in every way. He loved adventures and thoroughly enjoyed the outdoors of Michigan’s Upper Peninsula, where he was born and raised. He was a talented skier, mountain biker, and photographer. He also enjoyed weightlifting. He was an avid New England Patriots football fan. He had a kind, generous soul with a love for his family like no other. He will be forever loved and missed by his parents and three younger sisters, along with many friends and family.

Latest

Blog

Fellowship Grant Recipient’s article on Diagnosing Myocarditis

Dr. Tahir Kafil, is one of the Myocarditis Foundation’s Fellowship Grant Recipients from December, 2021. He worked with Dr. Peter Liu, at the Ottawa Heart Institute, in Canada and has…

Why Do I Have to Limit Exercise After Myocarditis?

After treatment, many patients live long, full lives free from the effects of myocarditis. For others, however, ongoing cardiovascular medication or even a heart transplant may be needed. Overall, dilated…

The Myocarditis Foundation Welcomes Dr. Dor Lotan to the Board of Directors

Dr. Dor Lotan is an Assistant Professor of Cardiology and Advanced Heart Failure, Mechanical Circulatory Support and Transplant Cardiologist at Columbia University Irving Medical Center, NYC. Recently, he has been…

Contact form

Send Us a Message

  • This field is for validation purposes and should be left unchanged.
Contact Us

Contact Us

(281) 713-2962
800 Rockmead Drive, Suite 155
Kingwood, TX 77339
[email protected]

Social Media

Donations

Help Us End Suffering and Sudden Death from Myocarditis!

Donate to the Myocarditis Foundation Today!