Registry of the Natural History of Recurrent Pericarditis in Pediatric and Adult Patients

Registry of the Natural History of Recurrent Pericarditis in Pediatric and Adult Patients

Status: Recruiting

Conditions: Pericarditis


Alaska Heart & Vascular Institute
Allegheny General Hospital
Barnes-Jewish Hospital/Washington University
Cincinnati Children's Hospital Medical Center
Houston Methodist Hospital
Johns Hopkins University
Legacy Hospital and Health Center DBA Legacy Research Institute
Midwest Cardiovascular Research Foundation
NYU Langone Health
Northwell Health - Lenox Hill Hospital
Pima Heart and Vascular
Scripps Health
Seattle Children's Hospital
TKL Research Inc.
University of California San Diego
University of Nebraska Medical Center
University of Vermont Medical Center
Virginia Commonwealth University


Anchorage, Alaska

Tucson, Arizona

La Jolla, California

San Diego, California

Davenport, Iowa

Baltimore, Maryland

Boston, Massachusetts

Minneapolis, Minnesota

Rochester, Minnesota

Saint Louis, Missouri

Omaha, Nebraska

Fair Lawn, New Jersey

New York, New York

New York, New York

Cincinnati, Ohio

Cleveland, Ohio

Portland, Oregon

Pittsburgh, Pennsylvania

Houston, Texas

Burlington, Vermont

Richmond, Virginia

Seattle, Washington

Contact Information:

Amanda Chriswell 907-550-2247 [email protected]

Aleksander Herber 520-576-4133 [email protected]

Study Coordinator 858-246-2413

Chelsea Butler 858-824-5241 [email protected]

Lori Christensen 563-324-2828 [email protected]

Kondal Reddy 410-502-2945 [email protected]

Wesley Xiong 617-732-4719 [email protected]

Stephanie Ebnet 612-863-3833

Halley Davidson 507-422-6246 [email protected]

Karen Bult 314-286-1767 [email protected]

Nathan Muhn 402-836-9364 [email protected]

Uzoma Okamgba-Nwoke 201-587-0500 ext 2548 [email protected]

Alexander Auchus 212-263-0855 [email protected]

212-434-4174 [email protected]

Mary Banks 513-636-2147 [email protected]

216-445-9007 [email protected]

503-413-1612 [email protected]

Geetha Rayarao 412-359-4076

Eilidh Cowan 346-238-4552 [email protected]

Alexandria Loutrel 802-847-8913 [email protected]

Emily Federmann 804-828-2775 [email protected]

Nair Deepthi 206-987-1014 [email protected]

The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.

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Contact Us

Contact Us

(281) 713-2962
800 Rockmead Drive, Suite 155
Kingwood, TX 77339
[email protected]

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