REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients

REgiStry Of the NAtural History of recurreNt periCarditis in pEdiatric and Adult Patients

Status: Recruiting

Conditions: Pericarditis


Alaska Heart & Vascular Institute
Barnes-Jewish Hospital/Washington University
Brigham and Women's Hospital
Carnegie Mellon University
Cincinnati Children's Hospital Medical Center
Cleveland Clinic
Houston Methodist Hospital
Johns Hopkins University
Legacy Hospital and Health Center DBA Legacy Research Institute
Mayo Clinic in Rochester
Midwest Cardiovascular Research Foundation
Minneapolis Heart Institute Foundation
NYU Langone Health
Northwell Health - Lenox Hill Hospital
Pima Heart and Vascular
Scripps Health
Seattle Children's Hospital
TKL Research Inc.
University of California - San Diego
University of Nebraska Medical Center
University of Vermont Medical Center
Virginia Commonwealth University


Anchorage, Alaska

Tucson, Arizona

La Jolla, California

San Diego

Davenport, Iowa

Baltimore, Maryland

Boston, Massachusetts

Minneapolis, Minnesota

Rochester, Minnesota

Saint Louis, Missouri

Omaha, Nebraska

Fair Lawn, New Jersey

New York, New York

Cincinnati, Ohio

Cleveland, Ohio

Portland, Oregon

Pittsburgh, Pennsylvania

Houston, Texas

Burlington, Vermont

Richmond, Virginia

Seattle, Washington

Contact Information:

JoAnn Clair, PhD
781 431 9100
[email protected]

Brief Summary:
The registry will focus on furthering the understanding of the natural history of recurrent pericarditis (RP), as well as document RP-related clinical, health-related quality of life (HRQoL), and economic burden and will assist the medical community to refine or develop data-driven recommendations for clinical management of RP patients to optimize clinical outcomes. It also aims to generate data in support of the impact of rilonacept on clinical outcomes in a real-world population.
Contact Us

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(281) 713-2962
800 Rockmead Drive, Suite 155
Kingwood, TX 77339
[email protected]

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