Here at the Myocarditis Foundation, we have seen how impactful people’s real-life stories are to others especially when speaking about a rare disease that is not known or understood by many, including those affected by it. They often learn about it as they travel through the actual disease process.
Once a person or family tells their story of myocarditis, there usually is not an update on how they are progressing or how the family is doing. We will be changing that with this new section to our Real-Life Story Section.
Candace Moose, a Co-Founder of the Myocarditis Foundation, a Giant Cell Myocarditis and Heart Transplant survivor, wants to keep people aware of what happens after the initial diagnosis by touching on the “emotional rollercoaster” if you will, of living with myocarditis after the diagnosis. Her articles will be posted on our Social Media pages with a link to “Candace’s Corner” on our Real-Life Stories section. They will also appear in our monthly newsletters. Please read her first article, titled: “The Gift of a Good Doctor”.