Rare Disease Week on Capitol Hill will take place in Washington, D.C.,from February 23-27. The five day event includes a rare disease documentary film screening , an art show , a legislative conference, the Women’s Democratic Club breakfast , Lobby Day at the U .S. Senate and House, a visit with the Rare Disease Congressional Caucus briefing, and Rare Disease Day at the National Institutes of Health. Candace Moose, President of the Board of Directors will be attending with patients and families who have been affected by the disease.

To learn more about Rare Disease week and to register to attend please visit NIH Rare Disease Day Website



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