Successful Rare Disease Week on Capital Hill

Candace Moose, President of the Board of Directors of The Myocarditis Foundation. Jamie Thomas-Ward, recovered Viral Myocarditis patient, Michele Coia-Veston, mother of young man who died from Giant Cell Myocarditis, attended Rare Disease Week on Capitol Hill this past week.

Rare Disease Week

The annual event is sponsored by Rare Disease Legislative Advocates. The MF team visited their Congressmen to ask for support for rare disease legislation. This event is held every year and we look forward to having more people effected by myocarditis attend in the future.