The Boslem family lost their beloved eight-year-old Lucy B to myocarditis on July 17th, 2011. Lucy was a sweet, happy, and vibrant girl that “could light up any room that…
Dr. Leslie Cooper, Director of the Gonda Vascular Center at the Mayo Clinic in Rochester, MN and the world’s leading expert in Giant Cell Myocarditis (GCM), shares information on the…
Dr. Leslie Cooper, the Director of the Gonda Vascular Center at the Mayo Clinic in Rochester, MN and the President and founder of the Myocarditis Foundation explains the disease viral…
On June 21st, the Sarah Knight Memorial Golf Tournament was held in Marion, IA. Golfers came from all over to be there for the Knight family and celebrate the memory…
A family in Iowa who lost their daughter Sarah to myocarditis. Such a wonderful family and a beautiful young woman; our hearts go out to them. It is with awareness…
The University of North Carolina at Chapel Hill has made a significant medical breakthrough in determining a possible cause of myocarditis, thanks to the research done by Dr. Silvio Antoniak.…
The Myocarditis Foundation has partnered with the American Heart Association to co-sponsor a two-year research fellowship grant, to be awarded to an individual working to advance the understanding of the diagnosis, treatment, or prevention of myocarditis. Applications are open on May 15th, 2013 and the grant will be awarded in December of 2013.
The Myocarditis Foundation attended the Rare Disease Legislation Advocates (RDLA) annual Conference and Lobby Day in Washington D.C.
This conference was open to rare disease organizations and their families to learn more about the legislative process and options organizations have to get their voice heard on Capitol Hill.
On Saturday, February 9th the Vanness family held the fundraiser “A Night to Remember Brad Vanness”, and again it was an incredible success and a true showing of what a close-knit community is capable of when coming together to honor and remember such a well-loved individual.
Brad Vanness passed away from suddenly from cardiac arrhythmia due to myocarditis on April 18th, 2010 and was just 27 years old. Myocarditis struck this beloved man and left his friends and family at a loss for why this happened to Brad, and wondering what exactly is this horrible disease that takes young healthy people so suddenly and unexpectedly.
The Myocarditis Foundation Announces the Receipt of Grant from the Enterprise Holdings Foundation The Myocarditis Foundation, an international non-profit organization, is honored to announce that it has received a grant…
