The Washington D.C. Chapter of Compassionate Friends will be facilitating workshops at our Family Meeting on Saturday September 26th. We have heard from many of you that you would like…
The Myocarditis Foundation is hosting their 3rd Annual Patient, Family and Research Meeting in National Harbor, Maryland, on September 25 and 26, 2015. Our meeting brings together the patients…
Our 4th Annual Patient, Family and Researcher Meeting has been set for September 16th and 17th at the Gaylord Palms Hotel in Orlando, Florida. We had a very positive meeting…
Michele Cola-Veston, mother of Nino a 21 year old boy who passed away from giant cell myocarditis, was interviewed by the Rare Disease Report about her families story of their…
Candace Moose, Co-Founder and President of the Board of the Myocarditis Foundation, was interviewed by the Rare Disease Report about the origins of the Myocarditis Foundation and what the Foundation’s current…
A group of staff and volunteers from The Myocarditis Foundation traveled to Medford, Massachusetts, this week to deliver a presentation to a team of students from Tufts University, representing 180…
Dr. Leslie Cooper attended the 11th Myocardial and Pericardial Disease Working Group, part of the European Society of Cardiology, this past week in Tel Aviv, Israel. The Myocarditis Foundation was…
Rare Disease Week on Capitol Hill will take place in Washington, D.C.,from February 23-27. The five day event includes a rare disease documentary film screening , an art show , a…
The incidence of myocarditis in children is uncertain but it is estimated that 1 per 100,000 children per year are affected. It has been reported that 0.05% of all pediatric…
Candace Moose, Giant Cell Myocarditis survivor due to a heart transplant and co-founder of the Myocarditis Foundation, wrote a beautiful and eloquent book tracking her experience of her heart transplant.…
